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首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >The evolution of regret: decision-making for parents of children with cancer
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The evolution of regret: decision-making for parents of children with cancer

机译：遗憾的演变：癌症儿童父母的决策

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Purpose Parents of children with cancer make treatment decisions in highly emotional states while feeling overwhelmed with information. In previous work, 1 in 6 parents demonstrated heightened decisional regret regarding treatment at diagnosis. However, it is unclear how regret evolves over time. We aimed to determine whether parents of children with cancer experience decisional regret over time and to identify parental characteristics and clinician behaviors associated with longitudinal regret. Methods Prospective, questionnaire-based cohort study of parents of children with cancer at two academic pediatric hospitals. Parents reported decisional regret at diagnosis, 4 months, and 12 months. Results At baseline, 13% of parents (21/158) reported heightened regret, 11% (17/158) at 4 months (p = 0.43, McNemar's test relative to baseline), and 11% (16/158) at 12 months (p = 0.35 relative to baseline and p = 0.84 relative to 4 months). In multivariable analysis using generalized estimating equations adjusted for the time point of survey completion, heightened regret was associated with non-white race/ethnicity (OR 11.57, 95% CI 3.53 to 41.05, p < .0001) and high anxiety (OR 2.01, 95% CI 1.04 to 3.90, p = .04). Parents with high peace of mind (OR 0.24, 95% CI 0.09 to 0.62, p = .003) and those reporting high-quality information (OR 0.22, 95% CI 0.07 to 0.69, p = 0.01) had lower odds of heightened regret. We found no association between heightened regret and the time point of survey administration. Conclusions A small, significant proportion of parents experience heightened regret throughout the first year of their child's cancer treatment; non-white parents are at higher risk. Effective communication may protect against regret.
机译：目的患有癌症的儿童父母在高度情绪状态下做出治疗决策，同时感觉不堪重负。在以前的工作中，6人在6名父母中表现出对诊断治疗的果断遗憾。但是，目前尚不清楚后悔随着时间的推移而演变。我们旨在确定癌症经历的儿童的父母是否会随着时间的推移判决，并确定与纵向遗憾相关的父母特征和临床医生行为。方法预期，两所学院儿科医院癌症患儿父母的综合研究。父母报告了诊断，4个月和12个月的果断遗憾。结果在基线，13％的父母（21/158）报道遗憾后遗憾，11％（17/158）在4个月（P = 0.43，相对于基线的测试），12个月内11％（16/158） （P = 0.35相对于基线，P = 0.84相对于4个月）。在使用针对调查时间的时间点调整的广义估计方程的多变量分析中，加强遗憾与非白种/种族（或11.57,95％CI 3.53至41.05，P <.0001）和高焦虑（或2.01， 95％CI 1.04至3.90，p = .04）。高安心的父母（或0.24,95％CI 0.09至0.62，p = .003）以及报告的高质量信息（或0.22,95％CI 0.07至0.69，P = 0.01）的提高遗憾的几率较低。我们发现在调查管理的高度遗憾和时间点之间没有关联。结论在孩子癌症治疗的第一年父母经验中，父母的父母体验很高，尤为遗憾;非白父母风险较高。有效的沟通可以防止遗憾。

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