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首页> 外文期刊>Prenatal Diagnosis >“The communication and support from the health professional is incredibly important”: A qualitative study exploring the processes and practices that support parental decision‐making about postmortem examination
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“The communication and support from the health professional is incredibly important”: A qualitative study exploring the processes and practices that support parental decision‐making about postmortem examination

机译：“卫生专业人员的沟通和支持令人难以置信的重要”：一个定性学研究，探索支持父母决策的过程和实践关于淘汰后审查

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Abstract Background Consent rates for postmortem (PM) examination in the perinatal and paediatric setting have dropped significantly in the United Kingdom, the United States, and the Western Europe. We explored the factors that act as facilitators or barriers to consent and identified processes and practices that support parental decision‐making. Methods A qualitative study conducted with bereaved parents, parent advocates, and health care professionals in the United Kingdom. Analysis was conducted on 439 free‐tect comments within a cross‐sectional survey, interviews with a subset of 20 survey respondents and 25 health professionals, and a focus group with five parent advocates. Results Three broad parental decision‐making groups were identified: 1, “Not open to postmortem examination”; 2, “Consent regardless of concerns”; and 3, “Initially undecided.” Decisional drivers that were particularly important for this “undecided” group were “the initial approach,” “adjustment and deliberation,” “detailed discussion about the procedure,” and “formal consent.” The way in which these were managed by health care staff significantly impacted whether those parents' consented to PM, particularly for those who are ambivalent about the procedure. Conclusions We propose a set of recommendations to improve the way PM counselling and consent is managed. Adopting such measures is likely to lead to improved family experience and more consistent and high‐quality discussion regarding PM.
机译：摘要在围产期和儿科环境中的后期后期（PM）考试的背景同意率在英国，美国和西欧的占地面积大幅下降。我们探讨了作为辅导员或障碍的因素，并确定支持父母决策的进程和做法。方法采用联合王国的亲人父母，父母倡导者和医疗保健专业人员进行的定性研究。在横断面调查中对439个自由文化评论进行了分析，采访了20名调查受访者和25名卫生专业人士的子集，以及具有五个家长倡导者的焦点小组。结果确定了三个广阔的父母决策群体：1，“未开放后审查”; 2，“无论疑虑的同意，同意”; 3，“最初未定”。对这一“未定”组特别重要的策法驱动因素是“初步方法”，“调整和审议”，“关于该程序的详细讨论，”和“正式同意”。这些卫生保健人员管理的方式显着影响了那些父母同意下午的父母，特别是对于那些矛盾的人的程序。结论我们提出了一套建议，以提高PM咨询和同意的方式。采取这些措施可能会导致改善家庭体验，并更加一致，更高质量的PM讨论。

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  • 来源
    《Prenatal Diagnosis》 |2019年第13期|共12页
  • 作者

    Lewis Celine; Riddington Megan; Hill Melissa; Bevan Charlotte; Fisher Jane; Lyas Lucy; Chalmers Ann; Arthurs Owen J.; Hutchinson John C.; Chitty Lyn S.; Sebire Neil;

  • 作者单位

    North East Thames Regional Genetics ServiceGreat Ormond Street Hospital for Children NHS Foundation;

    Department of Psychological ServicesGreat Ormond Street Hospital for Children NHS Foundation;

    North East Thames Regional Genetics ServiceGreat Ormond Street Hospital for Children NHS Foundation;

    Stillbirth and neonatal death charity (Sands)London UK;

    Antenatal Results and Choices (ARC)London UK;

    The Lullaby TrustLondon UK;

    Child Bereavement UKCheshire UK;

    Department of RadiologyGreat Ormond Street Hospital for Children NHS Foundation TrustLondon UK;

    Department of HistopathologyGreat Ormond Street Hospital for Children NHS Foundation TrustLondon UK;

    North East Thames Regional Genetics ServiceGreat Ormond Street Hospital for Children NHS Foundation;

    Department of HistopathologyGreat Ormond Street Hospital for Children NHS Foundation TrustLondon UK;

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  • 正文语种 eng
  • 中图分类 妇科学;
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