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Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living With Congenital Heart Defects

机译:慢性悖论:对先天性心脏缺陷生活的定性家庭观点的系统审查

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There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.
机译:近几十年来先天性心脏缺陷(CHDS)的诊断和治疗有很大的进展,这显着提高了生存率。 因此,对CHDS如何影响儿童和青少年的日常生活,越来越兴趣。 我们通过对现有定性研究的系统审查,从儿童和青年的角度来看,以CHDS作为一个特殊的生活,从儿童和青少年的角度来看。 基于20篇文章的Meta-Inthnographic分析(通过PubMed,Embase,EBSCohost,Psioninfo,Scopus和2016年1月的Scopus和Science的网络确定),我们认为与CHDS的生活以慢性悖论为特征在一起 家庭必须导航的过渡,正常和期货。

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