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'They give us hope': HIV-positive caregivers' perspectives on the role of social support for health

机译:“他们给我们希望”:艾滋病毒阳性护理人员对社会支持对健康的作用的看法

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A number of studies indicate that social support is associated with better health outcomes among HIV-positive caregivers of children, suggesting its potential importance for interventions aimed at safeguarding the well-being of this population. However, there is very little published literature assessing the support-health relationship or evaluating applied social support interventions with HIV-positive populations in HIV-endemic contexts of the developing world. The global literature on social support and health suggests that, in order to refine theory and improve interventions, greater attention should be paid to specific dimensions of support, such as types and sources, as well as the processes through which support may be affecting health outcomes. This article presents and discusses data from in-depth interviews with 12 HIV-positive primary caregivers of children living in an HIV-endemic, low-resourced, urban South African community. The primary aim of this qualitative work was to provide further insight into survey findings of a positive relationship between social support and self-reported general health and functioning, by exploring caregivers' personal experiences of being supported within their community, and their perceptions on how this "informal" support may be influencing their health. Our qualitative data highlight the importance of instrumental and emotional support for this population, the relevance of support provider characteristics and some of the processes or pathways that are likely explaining the support-health link. These processes include psychological factors such as mastery and hope, coping strategies and positive health behaviours. We provide recommendations for future research to further this work, and discuss implications for health interventions.
机译:多项研究表明,社会支持与儿童的HIV阳性看护者的健康状况更好相关,表明其对旨在维护该人群福祉的干预措施的潜在重要性。但是,很少有已发表的文献评估发展中国家的艾滋病毒流行情况下与艾滋病毒阳性人群的支持与健康的关系或评估应用的社会支持干预措施。关于社会支持和健康的全球文献表明,为了完善理论和改进干预措施,应更加关注支持的具体方面,例如类型和来源,以及支持可能影响健康结果的过程。本文介绍并讨论了在12个HIV阳性,主要护理者中进行深入访谈的数据,这些儿童生活在HIV流行,资源贫乏的南非城市社区中。这项定性工作的主要目的是通过探索看护者在社区中获得支持的个人经历以及他们对如何获得这种支持的看法,从而进一步了解社会支持与自我报告的总体健康和功能之间的积极关系的调查结果。 “非正式”的支持可能会影响他们的健康。我们的定性数据强调了对这种人群的工具和情感支持的重要性,支持提供者特征的相关性以及可能解释支持与健康联系的某些过程或途径。这些过程包括心理因素,例如精通和希望,应对策略和积极的健康行为。我们为进一步的研究提供建议,以进一步开展这项工作,并讨论对健康干预措施的影响。

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