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The fluidity of disclosure: A longitudinal exploration of women's experience and understanding of HIV disclosure in the context of pregnancy and early motherhood

机译:披露的流动性:纵向探索在怀孕和早孕背景下妇女的经验和对HIV披露的理解

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HIV disclosure is emphasised as an important component of efforts to prevent HIV transmission, including those to prevent transmission from mother to child. Studies which approach disclosure as a dichotomous variable that is either present or absent have generated a significant body of research describing disclosure patterns, antecedents, barriers and consequences. This study joins a growing body of research which explores disclosure as a complex, selective and gradual process occurring within the context of relationships. Using a qualitative, longitudinal ethnographic approach, the study explores HIV-positive women's subjective experience of disclosure and how they make meaning and understand disclosure processes during pregnancy and early motherhood. An interpretative phenomenological analysis of field notes from participant observation and in-depth interview transcripts suggests that women may experience disclosure as a more fluid construct than previously assumed. In contrast to the traditional dichotomous and linear approach to understanding disclosure, the meaning ascribed to disclosure "events" and behaviours was changeable and even reversible over time. These shifts occurred alongside changes in women's internal, interpersonal and material worlds and served important psychological and social functions. The findings have important implications for HIV counsellors working to encourage disclosure in the context of prevention interventions.
机译:强调艾滋病毒的披露是防止艾滋病毒传播,包括防止母婴传播的重要组成部分。将公开视为存在或不存在的二分变量的研究已经产生了大量研究,描述了公开模式,前因,障碍和后果。这项研究加入了一个不断发展的研究机构,该机构将披露视为关系中发生的复杂,选择性和渐进的过程。该研究采用定性的纵向人种学方法,探讨了HIV阳性妇女的主观披露经历,以及她们如何在怀孕和早孕期间了解和理解披露过程。从参与者的观察和深入的访谈笔录中对实地记录进行的解释性现象学分析表明,女性可能会比以前假设的更容易理解信息。与传统的二分法和线性方法理解披露不同,披露“事件”和行为的含义是随时间变化的,甚至是可逆的。这些转变与妇女内部,人际关系和物质世界的变化同时发生,并起着重要的心理和社会作用。该发现对艾滋病毒咨询师在预防干预措施中鼓励披露的工作具有重要意义。

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