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So much for keeping secrets: the importance of considering patients' perspectives on maintaining confidentiality.

机译:对于保密而言,这是如此之多:考虑患者对保密的观点的重要性。

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Little data are available from patients' perspectives regarding the maintenance of confidentiality by care providers. Such data may be useful in determining the importance of confidentiality to patients and in developing appropriate policies and procedures regarding confidentiality. Three focus groups were conducted with support groups of rural HIV-positive patients. Text was coded inductively and analyzed with software designed for qualitative analysis. Participants perceived breaches of confidentiality in hospitals, clinics and health departments that occurred by word of mouth, computers, facsimile and written materials. Patients included sharing stigmatizing medical information among medical providers without prior consent as a breach. They made decisions about where to seek care based on the degree of professionalism of medical staff (which included respecting confidentiality), clinic location or the level of security of the organization's computer network since they believed that computers increase information access. Finally, participants believed that medical personnel should be taught the importance of maintaining confidentiality and that those who violated confidentiality should be punished. Patients would like confidentiality policies that require providers to: (1) explain procedures for sharing information, (2) request patients' specific consent for access to their medical records, even among other providers, and (3) punish those who breach confidentiality.
机译:从患者的角度来看,关于医护人员保持机密性的数据很少。这样的数据在确定机密性对患者的重要性以及制定有关机密性的适当政策和程序时可能很有用。与农村HIV阳性患者的支持小组一起进行了三个焦点小组讨论。对文本进行归纳编码,并使用专为定性分析设计的软件进行分析。与会人员认为,医院,诊所和卫生部门的保密性是通过口口相传,计算机,传真和书面材料造成的。患者包括未经事先同意即在医疗提供者之间共享带有歧视性的医疗信息。他们基于医务人员的专业程度(包括尊重机密性),诊所位置或组织计算机网络的安全级别来决定在哪里寻求护理,因为他们认为计算机可以增加信息访问权限。最后,与会人员认为应向医务人员传授保持机密的重要性,对违反机密性的人员应予惩处。患者希望保密政策要求提供者:(1)解释共享信息的程序;(2)甚至在其他提供者之间,要求患者明确同意访问他们的病历;以及(3)惩罚违反保密性的人。

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