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Patient and provider priorities for self-reported domains of HIV clinical care

机译：自我报告的HIV临床护理领域的患者和提供者优先事项

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摘要

We sought to understand how HIV-infected patients, their providers, and HIV care researchers prioritize self-reported domains of clinical care. Participants rank-ordered two lists of domains. A modified Delphi process was used for providers and researchers. Approximately 25% of patients were interviewed to discuss rationale for rank order choices. List 1 included anger, anxiety, depression, fatigue, physical function, pain, and sleep disturbance. List 2 included alcohol abuse, cognitive function, HIV stigma, HIV and treatment symptoms, medication adherence, positive affect, sexual risk behavior, sexual function, social roles, spirituality/meaning of life, and substance abuse. Seventy-four providers, 80 HIV care researchers, and 66 patients participated. Patients ranked context-based domains, such as HIV stigma, more highly than providers, while health behaviors, such as drug or alcohol use, ranked lower. Patients described a need to address wider-context challenges such as HIV stigma in order to positively impact health behaviors. Divergent patient and provider priorities highlight the importance of incorporating views from all stakeholders and suggests the need for a care approach that more effectively addresses contextual barriers to adverse health behaviors.
机译：我们试图了解被HIV感染的患者，他们的提供者和HIV护理研究人员如何优先考虑自我报告的临床护理领域。参与者对两个域列表进行排序。提供者和研究人员使用了改进的Delphi流程。约有25％的患者接受了采访，讨论了等级排序选择的理由。清单1包括愤怒，焦虑，抑郁，疲劳，身体机能，疼痛和睡眠障碍。清单2包括酗酒，认知功能，艾滋病毒耻辱，艾滋病毒和治疗症状，用药依从性，积极影响，性危险行为，性功能，社会角色，灵性/生命意义以及药物滥用。共有74名医疗服务提供者，80名艾滋病护理研究人员和66名患者参加了会议。患者对基于情境的领域（例如，艾滋病毒耻辱）的排名高于提供者，而对健康行为（如吸毒或酗酒）的排名较低。患者描述了有必要解决更广泛的挑战，例如对艾滋病毒的污名化，以便对健康行为产生积极影响。患者和医护人员的不同重点突出了纳入所有利益相关者观点的重要性，并建议需要一种护理方法，以更有效地解决不利健康行为的背景障碍。

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