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首页> 外文期刊>Journal of behavioral medicine >Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study
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Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study

机译：严重慢性疲劳综合征/肌间脑炎的青少年疲劳和社会调整相关的心理和人口因子：初步混合方法研究

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摘要

This mixed-methods study investigated factors associated with fatigue, disability and school attendance in young people with severe CFS/ME. Participants' illness experiences were also explored. Questionnaires were completed at baseline (T1) and approximately 5 months later (T2). There were 51 participants aged between 12 and 25, with a mean age of 18.8 years (SD 3.4). At T1, participants reported severe fatigue and poor social adjustment. Stronger fear avoidance beliefs at T1 were associated with higher fatigue at T2, and with worse social adjustment at T1 and T2. Female gender was associated with lower work/school attendance at T1 and T2 but not with higher fatigue or worse social adjustment. Having accessed treatment was associated with reporting lower levels of work/school attendance at T1 and T2. Multivariate analyses of key outcomes identified significant associations between stronger fear avoidance beliefs and worse social adjustment at T2, and between female gender and lower work/school attendance at T2. It was clear from the qualitative data that severe CFS/ME negatively impacted on many aspects of young people's lives. Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.
机译：这种混合方法研究了与严重CFS / ME的年轻人的疲劳，残疾和学校出席相关的调查因素。参与者的疾病经历也探讨了。问卷在基线（T1）和大约5个月后完成（T2）。 51名参与者年龄在12到25岁之间，平均年龄为18.8岁（SD 3.4）。在T1，参与者报告了严重疲劳和社会调整差。强烈的恐惧避免T1的信仰与T2的疲劳程度较高，并且在T1和T2时的社会调整较差。女性性别与T1和T2的较低工作/学校出席有关，但不具有更高的疲劳或更严重的社会调整。访问治疗与报告较低的工作/学校出勤率有关，T1和T2有关。关键结果的多元分析确定了强烈恐惧信念与T2的更糟糕的社会调整之间的重要协会，以及在T2的女性性别和较低的工作/学校出席之间。从最严重的CFS / ME对年轻人的生活的许多方面产生负面影响的定性数据很清楚。可以使用认知行为干预来针对活动的可怕信念。

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