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首页> 外文期刊>Journal of burn care & research: official publication of the American Burn Association >Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT
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Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT

机译：衡量烧伤伤害对儿童母公司的伤害的影响1至5年：学龄前生活影响的发展概念框架烧伤恢复评估剖面猫

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摘要

Due to the rapid developmental growth in preschool-aged children, more precise measurement of the effects of burns on child health outcomes is needed. Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ(0-5)), we developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1-5 years). We developed a working conceptual framework based on the BOQ(0-5), the National Research Council and Institute of Medicine's Model of Child Health, and the World Health Organization's International Classification of Functioning, Disability, and Health for Children and Youth. We iteratively refined our framework based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. We reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from our analysis: symptoms, functioning, and family. The symptoms domain describes parents' perceptions of their child's pain, skin-related discomfort, and fatigue. The functioning domain describes children's physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes.
机译：由于学龄前儿童的发展迅速，需要更精确地测量烧伤对儿童健康结果的影响。扩大到儿童/美国燃烧协会烧毁结果调查问卷0至5（BOQ（0-5）），我们开发了一个概念框架，描述了在评估学龄前儿童（1 - 5年）。我们开发了基于BOQ（0-5），国家研究委员会和医学研究所的儿童健康模式的工作概念框架，以及世界卫生组织的儿童和青年的运作，残疾和健康的国际分类。我们根据文献综述，焦点小组，访谈和专家共识会议迭代地改善了我们的框架。使用基础理论通知的方法进行定性分析数据。我们审查了95名儿科评估，进行了两组临床医生焦点小组和六个家长访谈，并咨询了23名临床医师专家。我们分析中出现的三个儿童健康成果域名：症状，运作和家庭。症状域描述了父母对孩子的痛苦，皮肤相关的不适和疲劳的看法。功能域描述了儿童的物理功能（总体和精细电机功能），心理功能（内部化，外化和失呼行为;创伤;厕所;恢复力），通信和语言开发（接收和产生意义）和社交功能（连接家庭/同龄人，友谊和戏剧）。家庭领域描述了家庭心理和常规功能结果。

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