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首页> 外文期刊>American journal of Alzheimer's disease and other dementias >Meaning and practice of palliative care for nursing home residents with dementia at end of life.
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Meaning and practice of palliative care for nursing home residents with dementia at end of life.

机译：临终时患有痴呆症的疗养院居民的姑息治疗的意义和实践。

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OBJECTIVE: To describe the meaning and practice of palliative care (PC) for nursing home (NH) residents with dementia at end of life (EOL). DESIGN: Concurrent mixed methods (quantitative retrospective chart review and qualitative field study). SETTING: Three NHs with varying approaches to EOL care: in-house non-Medicare hospice, Medicare hospice by outside agency, and Medicare hospice by outside agency plus specialized staff and comfort care unit. RESULTS: Residents' course fluctuated between curative and comfort care, with a noticeable increase in symptoms right before death. Hospice care was short. Most died of complications of dementia. Families found care decisions based on residents' uncertain disease course difficult. CONCLUSION: The role of PC for NH residents with dementia at EOL is complex and poorly understood. As they are in a residential setting, decisions need to be made about how residents live, as well as how they die, thus balancing quality of living/comfort with disease management.
机译：目的：描述临终性痴呆疗养院（NH）居民的姑息治疗（PC）的含义和实践。设计：并行混合方法（定量回顾性图表审查和定性现场研究）。地点：三个采用不同方式进行EOL护理的NH：内部非Medicare临终关怀，外部机构的Medicare临终关怀，外部机构的Medicare临终关怀以及专门人员和舒适护理部门。结果：居民的疗程在治疗和舒适护理之间有所波动，临死前症状明显增加。临终关怀很短。大多数人死于痴呆症并发症。家庭发现很难根据居民不确定的病程做出护理决定。结论：PC对EOL痴呆的NH居民的作用复杂且知之甚少。由于他们处于居住环境，因此需要就居民的生活以及他们的死亡方式做出决定，从而在生活质量/舒适度与疾病管理之间取得平衡。

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