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Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews

机译:发展积极框架,以描述利益相关者参与系统评论

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Objectives Involvement of patients, health professionals, and the wider public ('stakeholders') is seen to be beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide researchers in how to actively involve stakeholders in systematic reviews. In this paper, we report the development of the ACTIVE framework to describe how stakeholders are involved in systematic reviews. Methods We developed a framework using methods previously described in the development of conceptual frameworks relating to other areas of public involvement, including: literature searching, data extraction, analysis, and categorization. A draft ACTIVE framework was developed and then refined after presentation at a conference workshop, before being applied to a subset of 32 systematic reviews. Data extracted from these systematic reviews, identified in a systematic scoping review, were categorized against pre-defined constructs, including: who was involved, how stakeholders were recruited, the mode of involvement, at what stage there was involvement and the level of control or influence. Results The final ACTIVE framework described whether patients, carers and/or families, and/or other stakeholders (including health professionals, health decision makers and funders) were involved. We defined: recruitment as either open or closed; the approach to involvement as either one-time, continuous or combined; and the method of involvement as either direct or indirect. The stage of involvement in reviews was defined using the Cochrane Ecosystem stages of a review. The level of control or influence was defined according to the roles and activities of stakeholders in the review process, and described as the ACTIVE continuum of involvement. Conclusions The ACTIVE framework provides a structure with which to describe key components of stakeholder involvement within a systematic review, and we have used this to summarize how stakeholders have been involved in a subset of varied systematic reviews. The ACTIVE continuum of involvement provides a new model that uses tasks and roles to detail the level of stakeholder involvement. This work has contributed to the development of learning resources aimed at supporting systematic review authors and editors to involve stakeholders in their systematic reviews. The ACTIVE framework may support the decision-making of systematic review authors in planning how to involve stakeholders in future reviews.
机译:目标患者,卫生专业人员和更广泛的公众('利益攸关方)的目标是有利于研究的质量,相关性和影响,并可以提高系统评价的有用性和吸收。但是,缺乏证据和资源,以指导研究人员如何积极涉及利益相关者在系统性评论中。在本文中,我们报告了积极框架的发展,以描述利益相关者如何参与系统评价。方法我们使用先前在开发与其他公共参与领域的概念框架开发中描述的方法开发了框架,包括:文献搜索,数据提取,分析和分类。在会议研讨会上发表之前,开发了一个积极框架草案,然后在适用于32个系统评价的子集之前,提交。从系统范围审查中确定的这些系统评论中提取的数据被分类为预定义的构造,包括:涉及谁,利益攸关方如何招募,参与模式,在那里有哪些阶段和控制水平或控制水平或影响。结果最终的积极框架描述了是否涉及患者,护理人员和/或家庭和/或其他利益攸关方(包括卫生专业人员,卫生决策者和资助者)。我们定义了:招聘是开放或关闭的;参与的方法是一次性,连续或结合;以及参与的方法是直接或间接的。使用审查的Cochrane生态系统阶段定义了参与评论的阶段。根据利益攸关方在审查过程中的角色和活动确定的控制或影响程度,并作为参与的主动连续性描述。结论活跃框架提供了一种结构,用于描述利益相关者参与在系统审查中的关键组成部分,我们用这将总结利益相关者如何参与各种系统评价的子集。参与的活动连续性提供了一种新模式,它使用任务和角色来详细说明利益相关者参与的程度。这项工作有助于开发学习资源,旨在支持系统审查作者和编辑,让利益相关者在其系统评价中。积极的框架可以支持系统审查作者在规划如何在未来评论中涉及利益相关者的决策。

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