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首页> 外文期刊>Journal of intensive care medicine >Characterizing Citizens’ Preferences for Engagement in Patient Care and Research in Adult and Pediatric Intensive Care Units
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Characterizing Citizens’ Preferences for Engagement in Patient Care and Research in Adult and Pediatric Intensive Care Units

机译：特征在成人和儿科重症监护室中的患者护理和研究参与的公民偏好

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Rationale: Engagement promotes and supports the active participation of patients and families in health care and research to strengthen their influence on decision-making. We sought to characterize how citizens wish to be engaged in care and research in the intensive care unit (ICU). Methods: Interviewers administered questionnaires to visitors in 3 adult ICUs and 1 pediatric ICU. Results: We surveyed 202 (adult [n = 130] and pediatric [n = 72]) visitors. Adults and pediatric visitors prioritized 3 patient care topics (family involvement in rounds, improving communication between family members and health-care providers, and information transmission between health-care practitioners during patient transfers) and 2 research topics (evaluating prevention and recovery from critical illness). Preferred engagement activities included sharing personal experiences, identifying important topics and outcomes, and finding ways to make changes that respected their needs. Both respondent groups preferred to participate by completing electronic surveys or comment cards and answering questions on a website. Few respondents (<5%) wanted to participate in committees that met regularly. Although adult and pediatric respondents identified common facilitators and barriers to participation, they ranked them differently. Although both groups perceived engagement to be highly important, adult respondents were significantly less confident that their participation would impact care (7.6 ± 2.2 vs 8.3 ± 1.8; P = .01) and research (7.3 ± 2.4 vs 8.2 ± 2.0; P = .01) and were significantly less willing to participate in care (5.6 ± 2.9 vs 6.7 ± 3.0; P = .007) and research (4.7 ± 3.0 vs ± 5.8 ± 3.0; P = .02). Conclusions: Adult and pediatric visitors expressed comparable engagement preferences, identified similar facilitators and barriers, and rated engagement highly. Adult visitors were significantly less confident that their participation would be impactful and were significantly less willing to engage in care and research.
机译：理由：参与促进并支持患者和家庭在医疗保健和研究中的积极参与，以加强对决策的影响。我们试图描述公民如何在重症监护室（ICU）中从事护理和研究。方法：采访者向3名成人ICU和1个儿科ICU的访客管理问卷。结果：我们调查了202（成人[n = 130]和儿科[n = 72]）访客。成人和儿科访客优先考虑3名患者护理主题（家庭参与轮次，改善家庭成员和医疗保健提供者之间的沟通，以及患者转运期间的医疗保健从业者之间的信息传输）和2个研究主题（评估预防和从批判性疾病中恢复）。优先的参与活动包括分享个人经验，确定重要的主题和结果，并找到改变其需求的改变的方法。两个受访者都愿意通过在网站上完成电子调查或评论卡和回答问题来参与。很少有受访者（<5％）希望参加定期遇到的委员会。虽然成人和儿科受访者确定了共同的促进者和参与障碍，但它们以不同的方式排名。虽然这两个团体都感受到的婚姻是非常重要的，但成年受访者明显不太自信，因为他们的参与会影响护理（7.6±2.2与8.3±1.8; p = .01）和研究（7.3±2.4与8.2±2.0; p =。 01）并显着不太愿意参加护理（5.6±2.9 Vs 6.7±3.0; p = .007）和研究（4.7±3.0 vs±5.8±3.0; p = .02）。结论：成人和儿科访客表达了可比的参与偏好，确定了类似的促进者和障碍，高度评价额定参与。成年人访客的信心显着不太自信，他们的参与会影响力，并且显着不太愿意参与护理和研究。

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