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首页> 外文期刊>Journal of renal nutrition: the official journal of the Council on Renal Nutrition of the National Kidney Foundation >Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study
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Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study

机译：慢性肾病膳食管理的患者经验：焦点小组研究

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ObjectivePeople with chronic kidney disease (CKD) contend with complex dietary recommendations. The challenge in practice is for clinicians to provide individualized support with the frequency and consistency required to sustain dietary changes. This study aimed to describe the experiences of patients with managing dietary recommendations, including their perspectives on the potential to use telehealth to support dietary management in CKD. DesignFocus group study. SubjectsTwenty-one adult patients with CKD (nondialysis) and 3 caregivers (total N?=?24) purposively sampled to achieve diverse demographic and clinical characteristics, from two nephrology units in Queensland, Australia. MethodsFive focus groups were conducted, audio recorded, and transcribed. Transcripts were analyzed using thematic analysis drawing on the principles of grounded theory. Main Outcome MeasureThemes aligned with the research question. ResultsWe identified five themes: exasperating stagnancy (patronized by redundant advice, confused and unprepared for dietary change, inevitability of failure, and barriers to accessing dietetic services); supporting and sustaining change (receiving regular feedback, incremental and comprehendible modification, practical guidance on food, flexibility in monitoring schedule, and valuing peer advice); fostering ownership (seeking kidney diet information, enacting behavior change, making reminders, and tracking progress against targets); motivators and positive learning instruction (relying on reassurance, positive reinforcement, focusing on allowable foods, and involving family); threats and ambiguities of risk (sugar as the culprit, ubiquity of salt, illegible food labeling, avoiding processed foods, and questioning credibility of sources). ConclusionsPatients with CKD desire a preventative approach to CKD progression and maintaining their health, however, are stymied by dietary restrictions and a lack of reliable dietetic advice. Easy-to-use telehealth options have the potential to overcome the shortcomings in current health service delivery which may be limiting factors to providing these approaches. They provide patients with pragmatic tools, comprehensible and consistent information which fosters ownership and self-monitoring.
机译：患有慢性肾病的目标（CKD）与复杂的饮食建议相反。实践中的挑战是为临床医生提供个性化支持，以频率和维持饮食变化所需的频率和一致性。本研究旨在描述患者管理膳食推荐的患者的经验，包括他们对使用远程医疗的潜力来支持CKD饮食管理的观点。 DesignFocus集团学习。患有CKD（非尼古斯）和3名护理人员（总N？=？24）的主题，以澳大利亚昆士兰州昆士兰州的两个肾病单位实现不同的人口统计和临床特征。方法进行了焦点组，录制和转录。使用主题分析绘制基于地面理论原理分析转录物。主要结果测量与研究问题一致。结果我们确定了五个主题：恼怒的停滞不前（通过冗余建议光顾，对饮食变化的困惑和毫无准备，失败的不可避免，以及获得饮食服务的障​​碍）;支持和维持变革（接受定期反馈，增量和理解修改，对食物的实际指导，监测时间表的灵活性，以及​​评估同行建议）;培养所有权（寻求肾脏饮食信息，制定行为改变，提出提醒，以及对目标的追踪进展）;刺激者和积极的学习教学（依靠保证，积极的积极强化，重点关注允许的食物，涉及家庭）;风险的威胁和含糊之临（糖作为罪魁祸首，盐，难以难以辨认的食品标签，避免加工食品，并质疑资料）。结论CKD渴望防止康复进展和维持健康的预防方法，饮食限制和缺乏可靠的饮食建议。易于使用的远程医疗选择有可能克服当前健康服务交付中的缺点，这可能是提供这些方法的限制因素。它们为患者提供务实的工具，综合和一致的信息，促进所有权和自我监控。

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