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首页> 外文期刊>American journal on intellectual and developmental disabilities: AJIDD >We want respect: Adults with intellectual and developmental disabilities address respect in research
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We want respect: Adults with intellectual and developmental disabilities address respect in research

机译：我们希望得到尊重：智力和发育障碍的成年人在研究中要尊重他人

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摘要

Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the voices of those most affected, the author studies the views of adults with intellectual and developmental disabilities on respect in research. Findings are consistent with disability rights' ideas and indicate that adults with intellectual and developmental disabilities have much to contribute to the discussion, that they value participating, and that they agree with calls to focus on human rights and dignity. Notably, participants spoke at lengths about the nature of interactions between researchers and participants. Implications are discussed, including how to infuse research standards with community-supported values and preferences.
机译：尊重是研究伦理准则的核心。科学界长期以来就如何表现出对具有智力和发育障碍的成年人的研究表现出尊重而争论不休，有时甚至不同意。为了阐明受影响最大的人的声音，作者研究了智力和发育障碍成年人对研究的尊重的观点。调查结果与残疾人权利的观点一致，并表明智力和发展性残疾的成年人可以为讨论做出很大贡献，他们重视参与，并同意将重点放在人权和尊严上。值得注意的是，参与者就研究人员与参与者之间互动的性质进行了详尽的讨论。讨论了影响，包括如何将研究标准与社区支持的价值观和偏好相融合。

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