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Marital relationships in amyotrophic lateral sclerosis

机译:肌萎缩性侧索硬化症的婚姻关系

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摘要

Our objective was to determine change over time in quality of marital relationships of people with ALS (pwALS). Fifty pwALS and their spouse carers completed measures of marital intimacy, pwALS's functional status, their own psychological status, and beliefs about the pwALS's illness. Twenty-seven dyads completed two further assessments, at six-monthly intervals. Post-ALS diagnosis ratings of current marital relationship did not change over time for pwALS or their spouses. However, spouse carers' ratings of their current marital relationship were lower than their ratings prior to illness onset. After adjusting for the pre-illness marital relationship, pwALSs' current ratings of their marital relationship were initially predicted by their self-rated psychosocial functional impairment and satisfaction with their personal relationships, and subsequently by levels of self-esteem. After adjusting for ratings of the pre-illness marital relationship, carers' current marital intimacy scores at first and second interview were predicted by ratings of the patients' psychosocial functional impairment and by feelings of burden at the third interview. In conclusion, quality of the pre-illness marital relationship is a significant predictor of ongoing marital relationship in both pwALS and their spouse carers. Additionally, social and psychological rather than disease symptoms are important predictors of marital relationship quality after ALS diagnosis.
机译:我们的目标是确定ALS患者(pwALS)的婚姻关系质量随时间的变化。 50名pwALS及其配偶照顾者完成了婚姻亲密关系,pwALS的功能状态,他们自己的心理状态以及对pwALS疾病的信念的测量。二十七个二元组每六个月进行两次进一步的评估。对于pwALS或其配偶,ALS对当前婚姻关系的诊断等级不会随时间变化。但是,配偶照顾者对他们目前婚姻关系的评分低于发病前的评分。在调整了患病前的婚姻关系之后,最初通过他们对社会心理功能障碍的自我评价和对人际关系的满意度,然后通过自尊水平,来预测pwALS对婚姻关系的当前评级。在对病前婚姻关系的等级进行调整之后,护理人员在第一次和第二次访谈中当前的婚姻亲密度得分是通过患者心理社会功能障碍的等级以及在第三次访谈中的负担感来预测的。总之,患病前婚姻关系的质量是pwALS及其配偶照顾者中持续婚姻关系的重要预测指标。此外,社交和心理而非疾病症状是ALS诊断后婚姻关系质量的重要预测指标。

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