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首页> 外文期刊>Annals of epidemiology >Healthy women's motivators and barriers to participation in a breast cancer cohort study: a qualitative study.
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Healthy women's motivators and barriers to participation in a breast cancer cohort study: a qualitative study.

机译：健康女性的动机和参与乳腺癌队列研究的障碍：定性研究。

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PURPOSE: This focus group study describes motivators and barriers to participation in the Mayo Mammography Health Study (MMHS), a large-scale longitudinal study examining the causal association of breast density with breast cancer, involving completion of a survey, providing access to a residual blood sample for genetic analyses, and sharing their results from a screening mammogram. These women would then be followed up long term for breast cancer incidence and mortality. METHODS: Forty-eight women participated in six focus groups, four with MMHS non-respondents (n = 27), and two with MMHS respondents (n = 21). Major themes were summarized using content analysis. Social cognitive theory (SCT) was used as a framework for interpretation of the findings. RESULTS: Barriers to participation among MMHS non-respondents were 1) lack of confidence in their ability to fill out the survey accurately (self-efficacy); 2) lack of perceived personal connection to the study or value of participation (expectancies); and 3) fear related to some questions about perceived cancer risk and worry/concern (emotional coping responses). Among MMHS respondents, personal experience with cancer was reported as a primary motivator for participation (expectancies). CONCLUSIONS: Application of a theoretical model such as social cognitive therapy to the development of a study recruitment plan could be used to improve rates of study participation and provide a reproducible and evaluable strategy.
机译：目的：该焦点小组研究描述了参与Mayo乳腺X线摄影健康研究（MMHS）的动机和障碍，这项大型纵向研究检查了乳腺密度与乳腺癌的因果关系，涉及完成一项调查并提供残留数据的途径血液样本进行遗传分析，并分享乳房X线检查的结果。然后将对这些妇女进行长期随访，以了解乳腺癌的发病率和死亡率。方法：四十八名妇女参加了六个焦点小组的调查，其中四个是MMHS非应答者（n = 27），两个是MMHS应答者（n = 21）。使用内容分析总结了主要主题。社会认知理论（SCT）被用作解释发现的框架。结果：MMHS非受访者参与的障碍是：1）对他们能否准确填写调查表的能力缺乏信心（自我效能感）; 2）缺乏与研究的个人联系或参与的价值（期望）; 3）与某些有关感知到的癌症风险和担忧/担忧（情绪应对）的问题有关的恐惧。在MMHS受访者中，癌症的个人经历据报道是参与的主要动机（期望）。结论：将诸如社会认知疗法之类的理论模型应用到研究招募计划的制定中，可以用来提高研究参与率并提供可重复和可评估的策略。

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