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Ethics and gender issues in palliative care in nursing homes: An Austrian participatory research project

机译:疗养院姑息治疗中的道德与性别问题:奥地利参与性研究项目

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Background: The development of palliative care in nursing homes in German-speaking countries has gained in importance within the past 15-20 years. Ethical and gender issues are core aspects of a palliative care culture and should therefore be better understood. Aims and objectives: The aim of this study was to highlight insights regarding ethical and gender issues, based on the experiences of professionals in nursing homes. Design: A 2-year participatory action research study was performed in collaboration with three nursing homes in Austria. Methods: The article focusses on 10 group discussions with interdisciplinary professional teams that were conducted to generate ethical narratives. Thematic and narrative analysis was undertaken both individually and within the interdisciplinary research team. Findings and interpretations were validated with practitioners and researchers. Findings: A total of 36 narratives were collected and summarised within eight themes concerning the theoretical journey of a nursing home resident with relatives from entry into the house until death. The most burdensome ethical dilemmas are not the ones around death and dying but rather those relating to small-scale everyday work/life issues. Sharing experiences and feelings in ethical discussions provides relief. Emotions are important facilitators of insight into ethical dilemmas. Gender issues can be observed in care situations as well as in the organisational structure of nursing homes. Conclusions: Opportunities to share experiences and perspectives around ethical questions in interdisciplinary group discussions help professionals to better understand difficult issues and find appropriate ways of managing them. Implications for practice: There is a need for communication structures such as facilitated ethical discussions that enable nursing home staff to reflect their everyday decisions. Expression of emotions should be encouraged in ethical decision-making processes in nursing homes. Gender-sensitive reflection supports the development of palliative care as organisational culture.
机译:背景:在过去的15到20年中,德语国家的养老院中的姑息治疗的发展变得越来越重要。伦理和性别问题是姑息治疗文化的核心方面,因此应得到更好的理解。目的和目标:本研究的目的是根据护理院专业人士的经验,突出有关伦理和性别问题的见解。设计:与奥地利的三个疗养院合作进行了为期2年的参与式行动研究。方法:本文重点讨论了与跨学科的专业团队进行的10组小组讨论,这些讨论产生了道德叙事。主题分析和叙事分析都是单独进行的,也属于跨学科研究团队。研究人员对研究结果和解释进行了验证。调查结果:总共收集了36个叙述,并归纳为八个主题,这些主题涉及疗养院居民与亲戚从进入房屋直至死亡的理论旅程。最沉重的道德困境不是围绕死亡和垂死的困境,而是与小规模的日常工作/生活问题有关的困境。在道德讨论中分享经验和感受可以缓解。情绪是洞察道德困境的重要促进者。在护理场所以及疗养院的组织结构中都可以观察到性别问题。结论:在跨学科小组讨论中分享有关道德问题的经验和观点的机会可帮助专业人士更好地理解棘手的问题并找到适当的解决方法。对实践的影响:需要一种交流结构,例如促进道德讨论,以使疗养院工作人员能够反映他们的日常决策。在养老院的道德决策过程中,应鼓励情绪表达。性别敏感的反思支持姑息治疗作为组织文化的发展。

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