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首页> 外文期刊>American journal of medical genetics, Part A >Narrative medicine in clinical genetics practice
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Narrative medicine in clinical genetics practice

机译：临床遗传学实践中的叙事医学

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Over the last 30 years medicine has undergone a significant paradigm shift. Due to the tremendous advances of modern medicine more and more people are living longer with their illnesses. These people have stories to tell, and they want these stories to be heard: They are reclaiming their voices. As clinical geneticists we need to hear what these voices are telling us, especially so in our area of clinical care where cures are rare, and disease states can be permanent. Narrative medicine is an important new skill set that hones abilities to do just that.This article highlights how integral narrative medicine is to clinical genetics practice, how geneticists already employ many of its tools and how they practice it diligently every day. I will show how geneticists can further improve their abilities to hear and honor patients' stories by writing and sharing stories with patients and with each other as doctors, counselors, and nurses, social workers and chaplains. The review presents the skills of close reading and how they improve patient care and illustrates how geneticists can, by using reflective writing, reshape their emotions in order to understand them, to let them go, and to make room for more. It presents the major types of illness narratives whose recognition allows us to hear and understand patients' stories. When used, the tools of narrative medicine can result in better patient care.
机译：在过去的30年中，医学经历了重大的范式转变。由于现代医学的巨大进步，越来越多的人因疾病而寿命更长。这些人有故事要讲，他们希望听到这些故事：他们正在收回自己的声音。作为临床遗传学家，我们需要听听这些声音在告诉我们什么，尤其是在我们的临床护理领域中，这种疗法很少见，疾病状态可能是永久的。叙事医学是一项重要的新技能，可提高这项工作的能力。本文重点介绍整体叙事医学对临床遗传学实践的影响，遗传学家如何利用其许多工具以及他们每天如何勤奋地实践它。我将展示遗传学家如何通过与患者以及作为医生，顾问，护士，社工和牧师的彼此之间编写和共享故事来进一步提高其听取和尊重患者故事的能力。该评论介绍了近距离阅读的技巧以及它们如何改善患者的护理，并说明了遗传学家如何通过反思性写作来重塑他们的情绪，以理解它们，让他们离开并为更多的空间腾出空间。它介绍了疾病叙事的主要类型，这些叙事的认可使我们能够听到和理解患者的故事。当使用叙事医学的工具时，可以带来更好的患者护理。

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