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首页> 外文期刊>Bulletin du Cancer: Journal de l'Association Francaise pour l'Etude du Cancer >Evaluation of a support group for children of parents with cancer after 4 years of experience [évaluation d'un groupe de soutien aux enfants de parents atteints de cancer après 4 années d'expérience]
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Evaluation of a support group for children of parents with cancer after 4 years of experience [évaluation d'un groupe de soutien aux enfants de parents atteints de cancer après 4 années d'expérience]

机译：四年经验为癌症父母的子女提供的支持小组的评估[4年经验为癌症父母的子女提供的支持小组的评估]

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Objective. When a parent is diagnosed with cancer, this is a major stress for him and his family. Children are often left out but perceive their parent's distress. This misunderstanding may cause multiple problems for their future. Support groups have been organized in order to limit these risks. After several years of practical experience and given its specific organisation, the care program's pertinence/ benefit must be evaluated. Methods. This study aimed to evaluate the first four years of existence of a support group for children of parents with cancer within a cancer centre (between September 2007 and April 2011). A questionnaire was sent to the participating families. The descriptive analysis of the results was anonymous. The questions focused on the organization, expectations, satisfactions, felt benefits or not and the future. Results. Sixteen of 30 families (53%) responded. The expectations were met in 87% of the cases especially with the establishment of an intra-family communication (90% of the cases). The sessions with several families were preferred as the other families' presence was perceived as a benefit without inconvenience (9 of 11 cases (82%). The support group was assistance for the future in most cases (10 of 13 cases (77%). There seems to be an evolution in the parent's awareness and anticipation concerning their children's need of information: 73% (22/30) of participation were at a curative stage. Conclusion. The short-term benefits in relation to initial expectations are described in this study. They are based on a solid and structured organization that has been well accepted by the families. Despite a small cohort, these encouraging results should allow other care providers to take over the model. A longer term evaluation is obviously necessary, according special attention to developmental issues.
机译：目的。当父母被诊断出患有癌症时，这对他和他的家人来说是一个很大的压力。孩子们经常被排除在外，但感觉到父母的痛苦。这种误解可能会给他们的未来带来多重问题。为了限制这些风险，组织了支持小组。经过几年的实践经验，并根据其特定的组织，必须评估护理计划的针对性/益处。方法。这项研究的目的是评估在癌症中心内为患有癌症的父母的孩子提供支持的最初四年（2007年9月至2011年4月之间）。向参与的家庭发送了问卷。结果的描述性分析是匿名的。问题集中在组织，期望，满意度，感觉到的好处与否以及未来。结果。 30个家庭中有16个（53％）做出了回应。 87％的病例达到了预期，尤其是建立了家庭内部沟通（90％的病例）。最好与几个家庭进行会谈，因为认为其他家庭的到来不会带来不便（11例中的9例，占82％）。支持小组在大多数情况下为将来提供帮助（13例中的10例，占77％）。 。父母对孩子对信息需求的认识和期望似乎有所发展：参与的73％（22/30）处于治愈阶段。这项研究基于一个牢固且结构化的组织，已为家庭所接受，尽管人数不多，但这些令人鼓舞的结果应能使其他护理提供者接手该模型。注意发展问题。

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