首页> 外文期刊>Genewatch : >Who Has the Right to Know?
【24h】

Who Has the Right to Know?

机译:谁有知情权?

获取原文
获取原文并翻译 | 示例
           

摘要

When designing genetic studies with human subjects, researchers address the question of whether and how to return results to participants, and also face the challenge of how to handle incidental findings-results that were not part of the aims of the study but may be important to the participant. Much of the discussion about return of results and incidental findings has focused on ethical implications for individual research participants. The general consensus is that results should be returned (or not returned) based on an informed consent process that has given a participant the right to choose.
机译:在设计针对人类受试者的基因研究时,研究人员要解决是否以及如何将结果返回给参与者的问题,并且还面临着如何处理偶然发现的挑战-结果并非研究目标的一部分,但可能对参与者。关于结果返回和偶然发现的许多讨论都集中在对个别研究参与者的伦理影响上。普遍共识是,应基于已赋予参与者选择权的知情同意程序来退回(或不退回)结果。

著录项

获取原文

客服邮箱:kefu@zhangqiaokeyan.com

京公网安备:11010802029741号 ICP备案号:京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有
  • 客服微信

  • 服务号