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Returning Research Results: Unresolved Issues

机译:返回研究结果:未解决的问题

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摘要

In recent years, several new bio-banks and some specific genetic studies have been designed so that some research results can be returned to participants. Yet many important issues must still be addressed. Many researchers, experts in research ethics, and others contend that only "actionable" genetic information should be returned to research participants. "Actionable" is defined here to mean that some action can be taken by the individual and/or her physician to prevent a genetic-related disease or disorder from occurring, or to alter in some way its natural progression.
机译:近年来,已经设计了一些新的生物库和一些特定的遗传研究,以便可以将一些研究结果返还给参与者。然而,许多重要问题仍然必须解决。许多研究人员,研究伦理学专家和其他人认为,只有“可操作的”遗传信息才应返回给研究参与者。这里定义“可采取行动”是指个人和/或她的医师可以采取某些行动来预防遗传相关疾病或病症的发生,或以某种方式改变其自然进程。

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