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Bigger Than Us

机译:比我们更大

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摘要

How much of our privacy will be challenged by decoding the human genome is an open, evolving question. Interpreting the coded "text" of the double helix is only half the task. Translating that information into the taxonomies of public policy requires balancing the contrasting values of scientific conventions and legal discourse. Most obviously to most people, the indiscriminate compilation of DNA databanks here and in other countries potentially compromises not just privacy but presumptions of innocence, as well as the right to be free from unreasonable searches and seizures. This is particularly so where databases sort people using categories overlaid with biases about social history, race, genetic determinism or inborn aggression. In 2013, for example, it was revealed that police in southern Sweden had compiled a registry of over 4,000 "travellers" (or Roma people), with personal information about whole families, going back to the 1800's. The database included no other Swedes, whatever their criminal history. Nor did this pretend to be just a list of Roma criminals - it included artists, athletes, civic leaders, and over 1,000 children, some as young as two years of age. Their only commonality was that they were Roma.1 (Sweden being Sweden, the police department involved ultimately turned itself in, reporting its own violation of a number of laws including the European Convention on Human Rights.)
机译:解码人类基因组将挑战我们多少隐私,这是一个开放,不断发展的问题。解释双螺旋的编码“文本”只是任务的一半。将这些信息转化为公共政策分类法,需要平衡科学惯例和法律话语的对立价值。对大多数人而言,最明显的是,在此以及在其他国家中,不加区分的DNA数据库的汇编不仅可能损害隐私权,而且会推定无罪推定,并且有可能免受不合理的搜查和扣押。在数据库使用分类时,尤其是在使用有关社会历史,种族,遗传决定论或先天性侵略的偏见对人们进行分类时,尤其如此。例如,在2013年,据透露,瑞典南部的警察已经编制了一个4,000多名“旅行者”(或罗姆人)的注册表,其中包含有关整个家庭的个人信息,可以追溯到1800年代。数据库中没有其他瑞典人,无论他们的犯罪历史如何。这也不是仅是罗姆人犯罪分子的名单,它包括艺术家,运动员,公民领袖和1,000多名儿童,有些甚至只有两岁。他们唯一的共同点是他们是罗姆人。1(瑞典是瑞典,所涉警察部门最终介入了,报告自己违反了包括《欧洲人权公约》在内的许多法律。)

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