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首页> 外文期刊>Family practice. >Under-representation of minority ethnic groups in cardiovascular research: A semi-structured interview study
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Under-representation of minority ethnic groups in cardiovascular research: A semi-structured interview study

机译：少数民族在心血管研究中的代表性不足：半结构式访谈研究

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Background. Minority ethnic groups are often excluded from research, and the reasons for this are complex. Objective. This study aimed to explore why minority ethnic groups do not participate in research, and how their participation can be increased. Methods. Ninety-one interviews were undertaken with people who either had (n = 48) or had not (n = 43) responded to the invitation to take part in a community heart failure screening study. These were split across four ethnic groups (African Caribbean, Bangladeshi, Indian and Pakistani) and between men and women. Participants were interviewedonce, face-to-face, either in English or with an interpreter if they wished. Interview transcripts were analysed thematically. Results. The main reason for participating in the screening study was for a health/heart check. Many participantseither had not understood that it was research or had not known what this meant. Most people who did not participate hadnot remembered receiving the invitation or had been unavailable at the time. Few participants, including those who had and those who had not participated in the screening study, had any understanding of the objectives and nature of research. Once this had been briefly explained to them, many described altruistic reasons for why they would participate in research in the future. Conclusions. We have shown that South Asians and Black African-Caribbean communities are willing to take part in research as long as they are approached directly and the reasons for the research and potential benefits are explained clearly to them.
机译：背景。少数民族经常被排除在研究之外，其原因很复杂。目的。这项研究旨在探讨为什么少数民族不参与研究，以及如何增加他们的参与。方法。与接受邀请的人（n = 48）或未参加（n = 43）的人进行了91次访谈，参加了社区心力衰竭筛查研究。这些人分为四个族裔群体（非洲加勒比，孟加拉国，印度和巴基斯坦），男女之间也有差异。参与者接受了一次英语或口译的面对面采访（如果愿意）。采访记录进行了专题分析。结果。参加筛查研究的主要原因是进行健康/心脏检查。许多参与者要么不了解这是研究工作，要么不知道这意味着什么。大多数没有参加的人都没有记得收到邀请或当时没有邀请。很少有参与者，包括那些曾经参加过筛查研究和没有参加过筛查研究的人们，对研究的目的和性质没有任何了解。一旦向他们简要解释了这一点，许多人就描述了他们为何将来参与研究的利他理由。结论我们已经表明，只要直接与南亚人和黑人非洲-加勒比海地区的社区建立联系，他们就愿意参加研究，并且向他们清楚地说明了研究的原因和潜在的好处。

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