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首页> 外文期刊>Neuromuscular disorders: NMD >Activity limitations in patients with neuromuscular disorders: a responsiveness study of the ACTIVLIM questionnaire.
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Activity limitations in patients with neuromuscular disorders: a responsiveness study of the ACTIVLIM questionnaire.

机译：神经肌肉疾病患者的活动受限：ACTIVLIM问卷的反应性研究。

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Recently, a self-reported scale of activity limitations, the ACTIVLIM questionnaire, was developed and validated in patients with neuromuscular disorders (NMD). The purpose of this study was to investigate its sensitivity to change. One hundred thirty-two patients with NMD (mean age, range: 31, 6-80) were assessed twice, with 21+/-4 months in between, using the ACTIVLIM questionnaire. Mean score change, effect size, standardized response, mean paired t-test and an individual-level statistical approach were calculated for groups of patients according to their self-rated functional status evolution and for three main diagnostic groups (Ambulant and wheelchair-bound Duchenne muscular dystrophy patients, myotonic dystrophy patients, and patients with Charcot-Marie-Tooth neuropathy). The responsiveness indices showed that the change in activity measures was higher in patients who reported deteriorated functional status and in patients with Duchenne muscular dystrophy. The ACTIVLIM questionnaire showed a good sensitivity to change and could be useful in research settings to characterize the disease course of NMD.
机译：最近，在神经肌肉疾病（NMD）患者中开发并验证了一种自我报告的活动受限量表ACTIVLIM调查表。这项研究的目的是调查其对变化的敏感性。使用ACTIVLIM调查表对132例NMD患者（平均年龄，范围：31、6-80）进行了两次评估，时间间隔为21 +/- 4个月。根据患者的自我评估的功能状态发展情况，计算了患者组的平均得分变化，效应量，标准化反应，平均配对t检验和个人水平的统计学方法，以及三个主要诊断组（Ambulant和轮椅束缚的杜兴氏）肌营养不良患者，强直性肌营养不良患者和Charcot-Marie-Tooth神经病患者）。反应性指数表明，活动状态的改变在报告功能状态恶化的患者和杜氏肌营养不良患者中更高。 ACTIVLIM调查表显示出对变化的良好敏感性，可用于研究环境以表征NMD的病程。

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