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首页> 外文期刊>Nutrition in clinical practice: official publication of the American Society for Parenteral and Enteral Nutrition >Quality of life analysis during transition from stationary to portable infusion pump in home parenteral nutrition patients: A Canadian experience
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Quality of life analysis during transition from stationary to portable infusion pump in home parenteral nutrition patients: A Canadian experience

机译：家用肠胃外营养患者从固定式输液泵过渡到便携式输液泵期间的生活质量分析：加拿大的经验

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Background: Quality of life (QOL) of patients receiving home parenteral nutrition (HPN) may be impacted by device technology. Historically, our HPN patients used pole-mounted pumps which can hinder activities and affect QOL. Methods: Patients receiving HPN with a pole-mounted pump completed Short Form 36 (SF-36?) and pump-specific questionnaires. Patients were then enrolled in a 2-month prospective crossover open study. Patients were randomized to use a pole-mounted pump or a portable pump. After 1 month, each arm crossed over. Measurements were repeated at 4 and 8 weeks. Results: Participants included 5 males, 15 females; age 52.8 ± 3.3 (mean ± SEM) years; 50% had short bowel syndrome; received HPN for 83.3 ± 15.9 months; infused HPN over 11.2 ± 0.3 hours/day; 4.3 ± 0.4 days/week. Portable pump users scored 53.75 ± 5.64, 61.25 ± 6.14, and 40.31 ± 4.94 in SF-36v2 physical, social, and health vitality, respectively, while the stationary pump users scored 45.50 ± 4.82, 55.00 ± 5.97, and 35.31 ± 4.63, respectively (NS). They reported ease of movement between rooms (4.11 ± 0.21 vs 1.44 ± 0.20; P =.001); when traveling (5.00 ± 0.00 vs 3.00 ± 0.45; P <.02) (1 = very difficult, 5 = very easy); 5.0% were sleep disturbed with the portable compared to 42.1% with pole-mounted pump (P <.04). Overall, patients were significantly happier with the portable vs pole-mounted pump (4.53 ± 0.19 vs 2.68 ± 0.22; P <.001) (1 = very unhappy, 5 = very happy). Conclusion: Our HPN patients reported improved happiness and satisfaction regarding ease of use and function with a portable vs pole-mounted pump
机译：背景：接受家庭肠胃外营养（HPN）的患者的生活质量（QOL）可能会受到设备技术的影响。从历史上看，我们的HPN患者使用的是杆式泵，这会阻碍活动并影响QOL。方法：使用杆式泵接受HPN的患者需填写简短表格36（SF-36？）和针对泵的问卷。然后将患者纳入为期2个月的前瞻性交叉开放研究。患者被随机分配使用立式泵或便携式泵。 1个月后，每只手臂交叉。在第4和第8周重复测量。结果：参加者男5例，女15例。年龄52.8±3.3（平均±SEM）岁; 50％患有短肠综合征; HPN持续83.3±15.9个月;每天输注HPN 11.2±0.3小时; 4.3±0.4天/周。便携式泵用户在SF-36v2的身体，社交和健康活力方面分别得分53.75±5.64、61.25±6.14和40.31±4.94，而固定泵用户分别得分45.50±4.82、55.00±5.97和35.31±4.63 （NS）。他们报告说房间之间的移动便利（4.11±0.21 vs 1.44±0.20; P = .001）;行驶时（5.00±0.00 vs 3.00±0.45; P <.02）（1 =非常困难，5 =非常容易）;便携式呼吸机的睡眠干扰为5.0％，而立式泵为42.1％（P <.04）。总体而言，患者对便携式泵与立式泵的满意度显着提高（4.53±0.19对2.68±0.22; P <.001）（1 =非常不满意，5 =非常满意）。结论：我们的HPN患者报告了便携式vs立式泵在易用性和功能方面的满意度和满意度得到改善

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