Safeguarding donors' personal rights and biobank autonomy in biobank networks: The CRIP privacy regime

Schr?der C.; Heidtke K.R.; Zacherl N.; Zatloukal K.; Taupitz J.

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Safeguarding donors' personal rights and biobank autonomy in biobank networks: The CRIP privacy regime

机译：在生物库网络中维护捐赠者的人身权利和生物库自主权：CRIP隐私制度

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Governance, underlying general ICT (Information and Communication Technology) architecture, and workflow of the Central Research Infrastructure for molecular Pathology (CRIP) are discussed as a model enabling biobank networks to form operational "meta biobanks" whilst respecting the donors' privacy, biobank autonomy and confidentiality, and the researchers' needs for appropriate biospecimens and information, as well as confidentiality. Tailored to these needs, CRIP efficiently accelerates and facilitates research with human biospecimens and data.

机译：讨论了治理，基本的常规ICT（信息和通信技术）体系结构以及分子病理学中央研究基础架构（CRIP）的工作流，该模型使生物银行网络能够形成运营的“元生物银行”，同时尊重捐赠者的隐私和生物银行自主权。和机密性，以及研究人员对适当的生物标本和信息以及机密性的需求。 CRIP根据这些需求量身定制，可以有效地加速和促进人类生物标本和数据的研究。

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《Cell and tissue banking: An international journal of banking, engineering & transplantation of cells and tissues》 |2011年第3期|共8页
作者
Schr?der C.; Heidtke K.R.; Zacherl N.; Zatloukal K.; Taupitz J.;
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原文格式 PDF
正文语种 eng
中图分类细胞生物学;
关键词
Biobanks; Governance; Infrastructure; Networks; Privacy;

机译：生物库;治理;基础设施;网络;隐私;

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1. Safeguarding donors' personal rights and biobank autonomy in biobank networks: The CRIP privacy regime [J] . Schr?der C., Heidtke K.R., Zacherl N., Cell and tissue banking: An international journal of banking, engineering & transplantation of cells and tissues . 2011,第3期

机译：在生物库网络中维护捐赠者的人身权利和生物库自主权：CRIP隐私制度
2. International Biobanking Summit V: Harmonizing Privacy Laws to Enable International Biobank Research [J] . Bledsoe Marianna J., Henderson Marianne, Tasse Anne-Marie, Biopreservation and biobanking . 2016,第5期

机译：第五届国际生物银行峰会：协调隐私法以开展国际生物银行研究
3. Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions [J] . PullmanD., EtchegaryH., GallagherK., Genetics in medicine . 2012,第2期

机译：个人隐私，公共利益和生物库：对政策重点和公众看法的联合分析
4. Proof-of-Concept Integration of Heterogeneous Biobank IT Infrastructures into a Hybrid Biobanking Network [C] . Sebastian MATE, Dennis KADIOGLU, Raphael W. MAJEED, German Association of Medical Informatics, Biometry and Epidemiology., Annual Meeting . 2017

机译：异构BioBank IT基础架构将异构Biobank IT基础设施集成到混合生物库网络中的验证
5. Privacy boundaries: Stories of protecting personal autonomy in the Information Age [D] . Dayan, Michael Oved 2005

机译：隐私边界：信息时代保护个人自主权的故事
6. Privacy revisited? Old ideals new realities and their impact on biobank regimes [O] . Arndt Bialobrzeski, Jens Ried, Peter Dabrock -1

机译：重新访问隐私？旧的理想新的现实及其对生物库制度的影响
7. Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy [O] . Ursin Lars Øystein 2015

机译：生物银行参与者的职责和权利：原则上的自治，同意，自愿和隐私

Safeguarding donors' personal rights and biobank autonomy in biobank networks: The CRIP privacy regime

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