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首页> 外文期刊>Schizophrenia research and treatment >'Sometimes It's Difficult to Have a Normal Life': Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia
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'Sometimes It's Difficult to Have a Normal Life': Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

机译：“有时很难过正常的生活”：一项定性研究的结果，该研究探讨了精神分裂症患者的照顾者负担

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Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding "caregiver burden" in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.
机译：目标。作为以早期发作和慢性疾病过程为代表的疾病，照料精神分裂症患者可能会对看护者的生活产生重大影响。这项研究旨在调查精神分裂症患者看护者的主观经历，以此来理解该人群中“看护者负担”。方法。面对面的定性访谈是对19位以美国英语为母语的精神分裂症患者（至少是中病患者）的看护者进行的。访谈笔录采用扎实的理论方法进行分析，其发现可用于为概述护理人员经历的初步概念模型提供信息。结果。结果支持这样的论断，即精神分裂症患者在很大程度上依赖看护者提供照料，而照看者随后报告称自己缺乏时间和其他职责（例如家庭和工作）。照料者的负担经常表现为身体（例如疲劳，疾病）和情绪健康（例如抑郁和焦虑）的损害。结论照顾精神分裂症患者会对非正式（无偿）照料者的生活产生重大影响，减轻照料者负担对于管理个人和社会成本至关重要。未来的研究应集中在建立评估精神分裂症患者看护者负担的可靠和有效手段，以指导开发和评估减轻这种负担的干预措施。

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