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The rights of psychiatric patients in China: A survey of medical staff and consumers' attitudes toward patient participation in clinical trials

机译：中国精神病患者的权利：对医务人员和消费者对患者参与临床试验的态度的调查

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摘要

To explore and compare attitudes of consumers (patients and their family members) and medical staff toward clinical trials related to mental health in China, we developed two questionnaires for medical staff and patients and their family members. Approximately 66.2% of medical staff who had no research experience believed that patients could be persuaded to participate in clinical trials, but the percentage of consumers who believed so was just 12.5%. Both groups agreed that written informed consent was required; however, more medical staff than patients agreed that such consent could be provided by patients or their guardian (88.4% vs. 71.4%). Only 9.5% of medical staff thought that patient treatment would be compromised by refusal to participate; the proportion of consumers who thought the same was 29.4%. Great differences exist between medical staff and consumers' attitudes and beliefs regarding clinical trials. Medical staff were more likely to have a favorable attitude toward their patients participating in clinical trials and considered that informed consent could be provided by guardians rather than the patient.
机译：为了探讨和比较消费者（患者及其家人）和医务人员对中国心理健康相关临床试验的态度，我们针对医务人员，患者及其家人制定了两份问卷。没有研究经验的医务人员中，大约有66.2％的人相信可以说服患者参加临床试验，但认为如此的消费者比例仅为12.5％。两组都同意需要书面知情同意;但是，有更多的医务人员同意患者或监护人可以提供此类同意（88.4％vs. 71.4％）。只有9.5％的医务人员认为拒绝参加会损害患者的治疗;认为相同的消费者比例为29.4％。医务人员与消费者对临床试验的态度和信念之间存在巨大差异。医务人员更有可能对参加临床试验的患者持积极态度，并认为可以由监护人而不是患者提供知情同意。

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