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首页> 外文期刊>Sociology of health & illness >Choosing not to choose: reproductive responses of parents of children with genetic conditions or impairments.
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Choosing not to choose: reproductive responses of parents of children with genetic conditions or impairments.

机译：选择不选择：患有遗传病或有缺陷的儿童的父母的生殖反应。

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Parents of children with genetic conditions or impairments stand in a unique position with regard to choices and dilemmas posed by prenatal screening and testing options offered to at-risk parents as a means to a 'healthy' baby. This article reports the results of a qualitative study of parents whose children are clients of a state-wide rural genetic outreach programme in the US. The analysis seeks to connect the lived experience of parents of children with genetic conditions or impairments to choices with which women are confronted as prenatal testing technologies continue to proliferate. It reports the finding that a majority of parents in the study chose not to choose: avoiding future pregnancies, declining prenatal testing for subsequent pregnancies, or limiting testing to 'for information only'. These decisions do not reflect simple rejection of medical intervention, opposition to abortion, and/or affirmation of a positive parenting experience with an affected child. Rather, choosing to avoid the condition of choice appears to be a strategy of responsible parenting that emerges from ambivalence towards the options presented by reproductive technologies.
机译：遗传病或有缺陷的儿童的父母在产前筛查和检测选择所带来的选择和困境方面处于独特的地位，这些选择和检测方法是为高危父母提供的一种“健康”婴儿的手段。本文报告了一项定性研究的结果，该研究对父母的子女进行了定性研究，他们的孩子是美国全州农村遗传推广计划的客户。该分析力图将遗传病或有缺陷的儿童的父母的生活经验与随着产前检测技术继续激增而使妇女面临的选择联系起来。它报告了一项发现，即研究中的大多数父母选择不选择：避免将来怀孕，拒绝对随后的怀孕进行产前检查或将检查限制为“仅供参考”。这些决定并未反映出简单地拒绝接受医疗干预，反对流产和/或肯定患病儿童的积极育儿经验。相反，选择避免选择条件似乎是一种负责任的养育策略，这种策略是出于对生殖技术提出的选择产生矛盾的。

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