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Managing biomedical uncertainty: the technoscientific illness identity.

机译:处理生物医学不确定性:技术科学的疾病识别。

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This paper analyses how the biomedical uncertainty of breast cancer contributes to the development of a new type of illness identity that is grounded in biomedical knowledge, advanced technology, and biomedical health and risk surveillance. The technoscientific identity (TSI) develops through the application of sciences and technologies to one's sense of self. Analysing narrative data from 60 in-depth interviews with women diagnosed with breast cancer, this research demonstrates how women diagnosed with breast cancer develop and maintain TSIs through four processes: (1) immersion in professional biomedical knowledge, (2) locating themselves within a technoscientific framework, (3) receiving support for the emerging TSI from the medical system and support networks, and (4) eventually prioritising their biomedical classifications over their suffering. Developing a TSI enables people to make sense of biomedical information, make decisions, and manage medical processes and relationships in the face of biomedical and personal uncertainty even as it extends the reach of technoscience and biomedicalisation.
机译:本文分析了乳腺癌的生物医学不确定性如何促进新型疾病身份的发展,这种疾病以生物医学知识,先进技术以及生物医学健康和风险监测为基础。技术科学身份(TSI)是通过将科学和技术应用于个人的自我意识而发展起来的。通过对60例被诊断出患有乳腺癌的女性进行的深度访谈中的叙述数据进行分析,该研究表明了被诊断出患有乳腺癌的女性如何通过四个过程来发展和维持TSI:(1)沉浸于专业的生物医学知识中;(2)将自己定位于技术科学领域框架;(3)从医疗系统和支持网络获得对新兴TSI的支持;(4)最终将其生物医学分类优先于其痛苦。开发TSI使人们能够在面对生物医学和个人不确定性的情况下理解生物医学信息,做出决定以及管理医疗过程和关系,即使它扩展了技术科学和生物医学化的范围。

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