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Measuring the effects of online health information for patients: Item generation for an e-health impact questionnaire

机译：衡量在线健康信息对患者的影响：电子健康影响问卷的项目生成

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摘要

Objective: The internet is a valuable resource for accessing health information and support. We are developing an instrument to assess the effects of websites with experiential and factual health information. This study aimed to inform an item pool for the proposed questionnaire. Methods: Items were informed through a review of relevant literature and secondary qualitative analysis of 99 narrative interviews relating to patient and carer experiences of health. Statements relating to identified themes were re-cast as questionnaire items and shown for review to an expert panel. Cognitive debrief interviews (n= 21) were used to assess items for face and content validity. Results: Eighty-two generic items were identified following secondary qualitative analysis and expert review. Cognitive interviewing confirmed the questionnaire instructions, 62 items and the response options were acceptable to patients and carers. Conclusion: Using a clear conceptual basis to inform item generation, 62 items have been identified as suitable to undergo further psychometric testing. Practice implications: The final questionnaire will initially be used in a randomized controlled trial examining the effects of online patient's experiences. This will inform recommendations on the best way to present patients' experiences within health information websites.
机译：目标：互联网是获取健康信息和支持的宝贵资源。我们正在开发一种工具，以评估具有经验和事实健康信息的网站的效果。这项研究旨在为建议的问卷调查提供一个项目库。方法：通过对相关文献的回顾和对与患者和护理人员的健康经历有关的99篇叙述性访谈的二级定性分析，为项目提供信息。与已确定主题相关的陈述被重新铸造为调查表项目，并显示给专家小组审阅。认知情况访谈（n = 21）被用来评估面部和内容有效性的项目。结果：经过二次定性分析和专家评审，确定了82个通用项目。认知访谈证实了问卷的使用说明，62项内容以及对患者和护理人员可接受的回答选项。结论：使用明确的概念基础来告知项目生成，已确定62个项目适合进行进一步的心理测验。实践意义：最终问卷将首先用于一项随机对照试验，以检查在线患者体验的影响。这将为在健康信息网站上介绍患者经验的最佳方法提供建议。

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