首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >A controlled, longitudinal study of the social functioning of youth with sickle cell disease.
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A controlled, longitudinal study of the social functioning of youth with sickle cell disease.

机译:对镰状细胞病青年的社会功能进行的对照纵向研究。

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OBJECTIVE: To assess the peer relationships of adolescents with sickle cell disease (SCD) and demographically similar comparison peers who did not have a chronic illness 2 years after an initial evaluation. As a result of ongoing medical challenges associated with SCD and the psychological demands of adolescence, we hypothesized that children with SCD would be viewed by peers as more sensitive and isolated, they would have fewer friends, and they would be less well liked than comparison peers. PATIENTS AND METHODS: At follow-up, peer (n = 2067) and teacher (n = 120) reports of social functioning were obtained for 60 children with SCD and 66 comparison peers. Social reputation (What is the child like?) and social acceptance (Is the child liked?) were evaluated cross-sectionally and longitudinally at the 2-year follow-up (ages 10-17). RESULTS: Relative to comparison peers, children with SCD were perceived as less aggressive by peers and teachers. No significant differences were found between groups on measures of friendship or social acceptance. Results of longitudinal analyses indicated that teacher-reported levels of sensitive and isolated behavior increased over time for comparison peers but remained stable for children with SCD. CONCLUSIONS: In general, the social functioning of children with SCD remained stable over time and was not suggestive of emergent social dysfunction. Findings are discussed within a developmental psychopathology framework, possible protective effect of SCD for youth from high-risk environments, and implications regarding pain management for these youth.
机译:目的:评估初次评估后两年未患慢性疾病的镰状细胞病(SCD)青少年和人口统计学上相似的同龄人的同伴关系。由于与SCD相关的持续医学挑战以及青春期的心理需求,我们假设同龄人将SCD儿童视为更敏感,更孤立,他们的朋友更少,与其他同龄人相比不那么受欢迎。 。患者和方法:在随访中,获得了60名患有SCD的儿童和66名比较同伴的同伴(n = 2067)和教师(n = 120)的社会功能报告。在两年的随访中(10-17岁),从横断面和纵向评估了社会声誉(孩子喜欢什么?)和社会认可度(孩子喜欢吗?)。结果:相对于同龄人,同伴和老师认为患有SCD的儿童的攻击性较弱。两组之间在友谊或社会接受度方面没有发现显着差异。纵向分析的结果表明,老师报告的敏感和孤立行为的水平对于同龄人而言随着时间的推移而增加,但对于SCD的儿童则保持稳定。结论:总的来说,SCD患儿的社会功能随着时间的推移保持稳定,并不表明出现了紧急的社会功能障碍。在发展性精神病理学框架内讨论了发现,探讨了SCD对高危环境年轻人的保护作用,以及对这些年轻人疼痛管理的影响。

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