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University of Utah Clinical Genetics Research Program as an NF1 Consortium Site

机译：犹他大学临床遗传学研究计划作为NF1联盟网站

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The University of Utah Clinical Genetics Research Program (CGRP) provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium (November, 2005 and April, 2006), participating in all teleconference calls, and active engagement in the development a The University of Utah Clinical Genetics Research Program (CGRP) provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium (November, 2005 and April, 2006), participating in all teleconference calls, and active engagement in the development and submission of a clinical trials application to the Department of Defense in August, 2006. David Viskochil served as vice-chair of the Biology Committee, and he organized a symposium of investigators and clinicians who were part of a MPNST (malignant peripheral nerve sheath tumor) Consortium and the MPNST Committee of the NF1 Consortium that convened as a satellite meeting of the full NF1 Consortium meeting in Atlanta in April, 2006. A study coordinator has been hired through the CGRP at the U of Utah to assist in the development of material submitted in the clinical trials grant proposal. No data has been collected.

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