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Can I help you? Information sharing in online discussion forums by people living with a long-term condition

机译:我可以帮你吗?在线讨论论坛中共享的信息,人们居住在线讨论中的长期条件

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摘要

Background Peer-to-peer healthcare is increasing, especially amongst people living with a long-term condition. How information is shared is, however, sometimes of concern to healthcare professionals. Objective This study explored what information is being shared on health-related discussion boards and identified the approaches people used to signpost their peers to information. Methods This study was conducted using a qualitative content analysis methodology to explore information shared on discussion boards for people living with diabetes. Whilst there is debate about the best ethical lens to view research carried out on data posted on online discussion boards, the researchers chose to adopt the stance of treating this type of information as “personal health text”, a specific type of research data in its own right. Results Qualitative content analysis and basic descriptive statistics were used to analyse the selected posts. Two major themes were identified: ‘Information Sharing from Experience’ and ‘Signposting Other Sources of Information’. Conclusions People were actively engaging in information sharing in online discussion forums, mainly through direct signposting. The quality of the information shared was important, with reasons for recommendations being given. Much of the information sharing was based on experience, which also brought in information from external sources such as healthcare professionals and other acknowledged experts in the field. With the rise in peer-to-peer support networks, the nature of health knowledge and expertise needs to be redefined. People online are combining external information with their own personal experiences and sharing that for others to take and develop as they wish.
机译:背景技术点对点医疗保健在不断增长,尤其是在长期居住的人群中。但是,医疗专业人员有时会担心如何共享信息。目的这项研究探讨了与健康相关的讨论板上共享的信息,并确定了人们用来向同伴传达信息的方法。方法本研究使用定性内容分析方法进行,以探讨在糖尿病患者讨论板上共享的信息。尽管存在着关于最佳伦理视角的争论,以查看对在线讨论板上发布的数据进行的研究,但研究人员选择采取将此类信息视为“个人健康文本”的立场,这是其个人资料中的一种特定类型的研究数据。自己的权利。结果采用定性内容分析和基本描述性统计数据分析所选职位。确定了两个主要主题:“来自经验的信息共享”和“路标其他信息来源”。结论人们主要通过直接路标积极参与在线讨论论坛中的信息共享。共享信息的质量很重要,并给出了建议的理由。大多数信息共享是基于经验的,这些经验还从外部来源(如医疗保健专业人员和该领域其他知名专家)获得了信息。随着点对点支持网络的兴起,需要重新定义健康知识和专业知识的性质。在线人们正在将外部信息与他们自己的个人经历结合起来,并共享给他人,以供他人取用和发展。

著录项

  • 作者

    Carol S Bond;

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  • 年度 2016
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  • 原文格式 PDF
  • 正文语种 eng
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