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Supportive Care Needs: External Support for Parents of Children with Thalassemia

机译：支持性护理需求：患有地中海贫血儿童父母的外部支持

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Deficiencies in the social support system are most often expressed by parents who have a child with thalassemia. Parents need to be able to adapt to changes in children's conditions. If parents do not get adequate social support there will be obstacles in the social interaction. In the end, this condition will also affect the emotional condition of parents in providing care for children with thalassemia. The purpose of the study was to obtain in-depth information about the supportive care needs of parents with young children with thalassemia. This study used a qualitative design with phenomenological studies. The characteristics of the participants were: being able to speak Indonesian, cooperatively and openly, not experiencing health problems, and being able to tell their experiences well. 5 participants in total were involved in this study through a snowball sampling method. The interview guide was used as a research guide in gathering data. Based on the results of data analysis, 5 participants obtained the theme of external support including the category of peer support among parents who had children with thalassemia, support from the environment around the home, and support from the school. These findings were expected to improve the fabric of love and communication among fellow thalassemia facilitated by the Association of Parents of with Thalassemia Children.
机译：社会支持系统的缺陷最常被父母表达，父母有一个孩子的父母。父母需要能够适应儿童条件的变化。如果父母没有充分的社会支持，社会互动会有障碍。最后，这种情况也会影响父母的情绪状况，为患有地中海贫血的儿童提供护理。该研究的目的是获得有关父母与幼儿的父母的支持性护理需求的深入信息。这项研究用来了具有现象学研究的定性设计。参与者的特征是：能够谈论印度尼西亚，合作，公开，不经历健康问题，并且能够彻底讲述他们的经历。通过雪球采样方法参与了总共参与本研究的5名参与者。面试指南被用作收集数据的研究指南。根据数据分析的结果，5名参与者获得了外部支持的主题，包括父母在患有地中海贫地区的父母之间的同伴支持的类别，从家庭周边的环境中支持，以及从学校的支持。预计这些调查结果预计将改善由父母与月经血症儿童的父母协会促进的Thalassemia之间的爱和沟通的织物。

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