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An exploration of the choices of patients with chronic kidney disease

机译：慢性肾病患者选择探索

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Background: Chronic kidney disease (CKD) is a progressive loss of renal function over a period of time. It is common, often unrecognized, and frequently coexists with other conditions, including diabetes and cardiovascular disease. There has been little research undertaken into treatment options and decision-making processes of CKD patients in general.Objectives: To determine the treatment options that CKD patients are offered and their views and experiences with regard to these choices.Design: A survey design was adopted.Participants: Participants included patients who had CKD at the time of the study and who were on renal dialysis.Results: A wide range of findings emerged from the study. Key findings showed that the majority of patients felt that written information was the main source of information, but that almost one-quarter of patients felt that they did not receive enough information about dialysis to allow them to make an informed choice. Almost one-fifth of participants did not consider that they had been strongly encouraged by health professionals to be independent with regard to their choice of dialysis. Conclusion: While the majority of patients feel fully informed and involved in the decision-making processes around treatment and management of their CKD, not all patients receive sufficient information to make an informed choice about their treatment and that treatment options are not always presented to patients and their families to enable them to make a fully informed choice.
机译：背景：慢性肾病（CKD）在一段时间内是肾功能的渐进丧失。通常，通常是未被识别的，并且经常与其他条件共存，包括糖尿病和心血管疾病。一般来说，对CKD患者的治疗方案和决策过程进行了几乎没有研究。目的：确定CKD患者提供的治疗方案及其在这些选择方面的观点和经验。指导：采用调查设计.Participants：参与者包括在研究时患有CKD的患者，患者患有肾透析。结果：从研究中出现了广泛的研究结果。主要发现表明，大多数患者认为书面信息是信息的主要来源，但几乎四分之一的患者认为他们没有收到有关透析的足够信息，以便他们允许他们做出明智的选择。几乎五分之五的参与者认为他们受到卫生专业人士强烈鼓励的，以便独立于他们选择透析。结论：虽然大多数患者感到充分了解并参与了围绕治疗和管理的决策过程，但所有患者都没有获得足够的信息，以便了解他们的治疗，并且不总是向患者提供治疗选择及其家人让他们能够完全了解了明智的选择。

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