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首页> 外文期刊>Journal of the Canadian Association of Gastroenterology >EXPLORING PATIENT PERSPECTIVES ON AN ONLINE STRESS REDUCTION BASED WELLNESS INTERVENTION IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE (IBD)
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EXPLORING PATIENT PERSPECTIVES ON AN ONLINE STRESS REDUCTION BASED WELLNESS INTERVENTION IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE (IBD)

机译：探讨患者对炎症性肠病患者的在线压力降低基于在线压力的健康干预（IBD）

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Background: Despite strong connections between stress and inflammatory bowel disease (IBD) associated symptoms, there has been limited research on stress reduction interventions for patients with IBD. Moreover, the research that has been conducted on this topic has shown mixed results with very few studies having used qualitative methodology to explore the patient experience. Aims: Our objectives for this study were to explore: (i) the experience of having IBD, (ii) the influence of an online 12-week stress reduction program on participant’s physical and emotional symptoms of IBD and (iii) the acceptability of the online program. Methods: We used a qualitative descriptive approach embedded within a larger randomised control trial (RCT) to explore the experiences of participants. Upon completion of the program, participants were invited to participate in semi-structured interviews. Interviews were analysed through an inductive process whereby transcripts were coded, with codes grouped into larger categories and then themes. Data collection and analysis occurred in a concurrent and iterative manner to enable refinement of interview questions and reflections on the research process. Results: We analysed a total of 55 interviews. Three main themes emerged from the data: (i) IBD as a source of stress and uncertainty, (ii) understanding the positive impacts of the stress reduction program, and (iii) enhancing program desirability. Participants reported a reduction in IBD symptom burden with improvements in their ability to manage everyday and disease-associated stressors, while building a positive mindset. Weekly check-ins with program facilitators enabled participants to build routine, enhancing accountability. Variation in program content and fostering connections with others in the IBD community were identified as potential program improvements. Conclusions: Our findings highlight the debilitating nature of IBD, with participants reporting significant disruptions to daily activities, uncertainty, and stress which served to worsen symptoms. Stress reduction programs like the one explored in our study offer an accessible avenue for reducing perceived stress, enhancing resilience and improving the physical condition of individuals diagnosed with IBD. Future research should explore the application of online stress reduction programs in patients experiencing other gastrointestinal disease.
机译：背景技术：尽管应力和炎症性肠病（IBD）相关症状之间的强烈连接，但对IBD患者的应力减少干预有限研究。此外，在本主题上进行的研究表明，由于使用了使用定性方法来探索患者体验的研究非常少的研究结果。目的：我们对本研究的目标是探索：（i）拥有IBD的经验（ii）在线12周强调减少计划对参与者的身体和情感症状和（iii）的影响在线计划。方法：我们利用嵌入在更大的随机控制试验（RCT）中嵌入的定性描述性方法来探索参与者的经验。完成该计划后，请参与者参加半结构化访谈。通过归纳过程分析了采访，由此编码成本转录，代码分为较大的类别，然后是主题。数据收集和分析以并发和迭代的方式发生，以实现采访问题的改进和研究过程的思考。结果：我们共分析了55项访谈。从数据中出现的三个主要主题：（i）IBD作为压力和不确定性的来源，（ii）了解压力减少计划的积极影响，并加强方案可取性。与会者报告说，IBD症状负担的减少，改善了他们管理日常和疾病相关的压力源的能力，同时构建积极的心态。随着节目促进者的每周办理登机手续，使参与者能够建立常规，提高问责制。计划内容的变化和IBD社区中其他人的联系被确定为潜在的计划改进。结论：我们的调查结果强调了IBD的衰弱性，与会者报告了对日常活动，不确定性和患有症状的压力的显着中断。我们研究中探索的压力减少计划为减少感知的压力提供无障碍途径，增强恢复力和改善诊断患有IBD的人的身体状况。未来的研究应该探讨在经历其他胃肠疾病的患者中的在线压力减少方案的应用。

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