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'That was my old life; it's almost like a past-life now': Identity crisis, loss and adjustment amongst people living with Chronic Fatigue Syndrome

机译:'那是我的前世;几乎就像是过去的生活”:慢性疲劳综合症患者的身份危机,失落和适应

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摘要

Individual in-depth interviews were conducted with 14 people with Chronic Fatigue Syndrome (CFS). The interviews centred on the experience of living with the condition from the participants' own perspectives. All interviews were transcribed verbatim and were analysed using Interpretative Phenomenological Analysis. Three inter-related themes were presented: 'Identity crisis: agency and embodiment'; 'Scepticism and the self' and 'Acceptance, adjustment and coping'. Participants reported an ongoing sense of personal loss characterised by diminishing personal control and agency. An inability to plan for the future and subsequent feelings of failure, worthlessness and insignificance ensued. Scepticism in the wider social environment only heightened the consequential identity crisis. The importance of acceptance for adjusting to a life with CFS was highlighted. The findings are discussed in relation to extant literature and issues for health psychology are raised.
机译:对14位患有慢性疲劳综合症(CFS)的人进行了单独的深入访谈。访谈的重点是从参与者自己的角度来看生活在这种情况下的经历。所有访谈均逐字记录,并使用解释现象学分析进行分析。提出了三个相互关联的主题:“身份危机:代理与体现”; “怀疑主义与自我”和“接受,调整与应对”。参加者报告说,他们的个人失落感持续存在,其特征是个人控制和代理能力下降。无法规划未来,以及随之而来的失败,毫无价值和无足轻重的感觉。在更广泛的社会环境中的怀疑态度只会加剧随之而来的身份危机。强调了接受对适应CFS生活的重要性。讨论了有关现有文献的发现,并提出了有关健康心理学的问题。

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