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首页> 外文期刊>Public understanding of science >Making sense of autism: Progressive engagement with science among parents of young, recently diagnosed autistic children
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Making sense of autism: Progressive engagement with science among parents of young, recently diagnosed autistic children

机译：理解自闭症：最近被诊断为自闭症儿童的父母逐渐与科学互动

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摘要

This exploratory study examines the significance of science to parents whose children were recently diagnosed with an autism spectrum disorder. It asks: (1) In what manner did science emerge in parents' concerns and resources as they attempted to understand and advocate for their children? (2) Did some parents engage with science in a qualitatively deeper or more intense manner? Using longitudinal data from interviews and a novel data collection strategy called engagement mapping, it shows that parents asked questions and used resources that were strongly associated with science, but these were vastly outnumbered by "near-science" concerns and resources that mingled meanings from science and daily life. Several parents in the study wove together concerns and resources in an iterative pattern referred to here as progressive engagement with science.
机译：这项探索性研究探讨了科学对于父母的孩子最近被诊断出患有自闭症谱系障碍的重要性。它问：（1）在父母试图理解和提倡子女的过程中，科学以何种方式出现在父母的关注和资源中？ （2）是否有一些父母以定性的更深刻或更强烈的方式参与科学？利用访谈的纵向数据和一种新颖的数据收集策略（称为参与映射），它表明父母提出了问题并使用了与科学密切相关的资源，但这些问题几乎被“近科学”关注和混合了科学意义的资源所取代和日常生活。研究中的几位家长以一种迭代的方式将关注点和资源编织在一起，在这里被称为渐进式参与科学。

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