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首页> 外文期刊>Prevention science: the official journal of the Society for Prevention Research >Human Subjects Protection and Technology in Prevention Science: Selected Opportunities and Challenges
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Human Subjects Protection and Technology in Prevention Science: Selected Opportunities and Challenges

机译：预防科学中的人类主题保护和技术：机遇与挑战

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摘要

Internet-connected devices are changing the way people live, work, and relate to one another. For prevention scientists, technological advances create opportunities to promote the welfare of human subjects and society. The challenge is to obtain the benefits while minimizing risks. In this article, we use the guiding principles for ethical human subjects research and proposed changes to the Common Rule regulations, as a basis for discussing selected opportunities and challenges that new technologies present for prevention science. The benefits of conducting research with new populations, and at new levels of integration into participants' daily lives, are presented along with five challenges along with technological and other solutions to strengthen the protections that we provide: (1) achieving adequate informed consent with procedures that are acceptable to participants in a digital age; (2) balancing opportunities for rapid development and broad reach, with gaining adequate understanding of population needs; (3) integrating data collection and intervention into participants' lives while minimizing intrusiveness and fatigue; (4) setting appropriate expectations for responding to safety and suicide concerns; and (5) safeguarding newly available streams of sensitive data. Our goal is to promote collaboration between prevention scientists, institutional review boards, and community members to safely and ethically harness advancing technologies to strengthen impact of prevention science.
机译：连接互联网的设备正在改变人们的生活，工作和相互联系的方式。对于预防科学家而言，技术进步为促进人类和社会的福祉创造了机会。挑战在于在最大程度地降低风险的同时获得收益。在本文中，我们将使用道德人类主题研究的指导原则，并提出对“通用规则”法规的更改，作为讨论预防技术新技术带来的特定机遇和挑战的基础。展示了与新人群进行研究并以新的水平融入参与者日常生活的好处，以及五个挑战以及技术和其他解决方案，以加强我们提供的保护：（1）在程序上获得足够的知情同意数字时代的参与者可以接受的; （2）在充分了解人口需求的同时，兼顾快速发展和广泛影响的机会; （3）将数据收集和干预整合到参与者的生活中，同时最大程度地减少干扰和疲劳; （4）为应对安全和自杀问题设定适当的期望; （5）保护新的敏感数据流。我们的目标是促进预防科学家，机构审查委员会和社区成员之间的合作，以安全合乎道德的方式利用先进技术来增强预防科学的影响力。

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