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首页> 外文期刊>The American journal of hospice and palliative care >The quality of life of hospice patients: patient and provider perceptions.
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The quality of life of hospice patients: patient and provider perceptions.

机译：临终关怀患者的生活质量：患者和提供者的看法。

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The purposes of this study were to describe the quality of life (QOL) of terminally ill patients in a home-based hospice program and to examine the relationship between QOL data and patients' symptom distress, ability to function, interpersonal communication (support from family and friends), well-being (their affairs in order), and transcendence (religious comfort/support) as recorded in their charts. QOL was measured by the Missoula-Vitas Quality of Life Index (MVQOLI), an instrument designed specifically for use with terminally ill patients. The study was conducted over a three-year period with 129 terminally ill patients enrolled in a home-based hospice program of care. The MVQOLI was administered to patients within 20 days of their admission to hospice. A retrospective chart review was conducted to determine patients' levels of symptom distress, ability to function, social support, whether or not their affairs were in order, and religious comfort/support. The mean age of participants in this studywas 67, with 54.3 percent male and 45.7 percent female. Cancer was the primary diagnosis for 92.2 percent of the sample, and 35 percent of these patients had a diagnosis of lung cancer. Of the 7.8 percent non-cancer diagnoses, five were diagnosed with AIDS, four with chronic obstructive pulmonary disease, and one with chronic heart failure. The results of this study revealed positive scores on the five dimensions of the MVQOLI QOL scale, indicating that within 20 days of admission to hospice, patients rated their QOL as good to very good. Data obtained from the chart review also indicated that patients did not experience a great deal of symptom distress (e.g., pain, nausea, shortness of breath, and restlessness). A significant correlation existed between age and QOL; number of interventions and pain levels; and marital status, well-being, interpersonal relationships, and transcendence. Shortness of breath and well-being were significantly correlated with QOL. There was no significant correlation between gender, race, or closeness to death and the five dimensions of the MVQOLI and chart review assessments.
机译：这项研究的目的是在家庭临终关怀计划中描述绝症患者的生活质量（QOL），并检查QOL数据与患者症状困扰，功能能力，人际交往之间的关系（家庭支持和朋友），幸福感（他们的事务按顺序排列）和超越（他们的宗教信仰/支持）记录在他们的图表中。生活质量（QOL）通过密苏拉-维塔斯生活质量指数（MVQOLI）进行测量，这是专为绝症患者设计的仪器。该研究历时三年，对129名绝症患者进行了家庭临终关怀护理。在患者进入临终关怀后的20天内将MVQOLI给予患者。进行回顾性图表审查，以确定患者的症状困扰水平，功能能力，社会支持，他们的事务是否井井有条以及宗教信仰/支持。该研究参与者的平均年龄为67岁，其中男性占54.3％，女性占45.7％。癌症是样本的92.2％的主要诊断，其中35％的患者被诊断出患有肺癌。在7.8％的非癌症诊断中，有5例被诊断出患有AIDS，4例患有慢性阻塞性肺疾病和1例患有慢性心力衰竭。这项研究的结果显示，MVQOLI QOL量表在五个维度上都获得了积极的评分，表明在临终临终关怀的20天内，患者对QOL的评价为好。从图表审查中获得的数据还表明，患者没有出现很多症状困扰（例如，疼痛，恶心，呼吸急促和躁动）。年龄和生活质量之间存在显着相关性。干预次数和疼痛程度;婚姻状况，幸福感，人际关系和超越。呼吸急促和幸福感与生活质量显着相关。性别，种族或死亡亲密度与MVQOLI和图表审查评估的五个维度之间没有显着相关性。

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