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首页> 外文期刊>The American journal of hospice and palliative care >How do surrogate decision makers describe hospice? Does it matter?
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How do surrogate decision makers describe hospice? Does it matter?

机译：替代决策者如何描述临终关怀？有关系吗？

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摘要

We interviewed 71 surrogate decision makers of older, chronically ill veterans to explore their knowledge of hospice and their role in helping loved ones access hospice services. We asked them to describe hospice and any previous hospice experiences. Of the group, 24 percent with hospice experience and 14 percent without hospice experience correctly described three key aspects of hospice: who hospice cares for, where the care is provided, and the goal of the care. Additionally, we found evidence that surrogates who correctly described the three key aspects of hospice were inclined to pursue hospice care for loved ones in the future, and surrogates who provided less complete descriptions of hospice might not access it. Since surrogates often help dying patients access care, incomplete knowledge of hospice may be an important barrier to hospice services. We advocate that clinicians discuss the three key aspects of hospice during routine advance care planning sessions with patients and their future surrogate decision makers.
机译：我们采访了71位老年，慢性病退伍军人的代孕决策者，以探讨他们对临终关怀的了解以及他们在帮助亲人获得临终关怀服务方面的作用。我们要求他们描述临终关怀和以前的临终关怀经历。在该小组中，有24％的具有临终关怀经验的人和14％的没有临终关怀经验的人正确地描述了临终关怀的三个关键方面：谁为临终关怀所护理，提供护理的地点以及护理的目标。此外，我们发现证据表明，正确描述临终关怀的三个关键方面的代孕者将来倾向于对亲人进行临终关怀护理，而对临终关怀的描述不够完整的代孕者可能无法使用它。由于代孕通常有助于垂死的患者获得护理，因此对临终关怀的不完全了解可能是临终关怀服务的重要障碍。我们提倡临床医生在例行的预先护理计划会议上与患者及其未来的代孕决策者讨论临终关怀的三个关键方面。

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