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首页> 外文期刊>The Canadian Journal of Neurological Sciences: le Journal Canadien des Sciences Neurologiques >Treatment comfort of adult neurologists in childhood onset conditions
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Treatment comfort of adult neurologists in childhood onset conditions

机译：成人神经科医生在儿童期发病时的治疗舒适度

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摘要

Background: The majority of children with chronic neurodevelopmental disabilities are surviving to adulthood. Our goal was to assess how prepared and comfortable adult neurologists are in treating young adults with childhood onset chronic neurological conditions and evaluate the difficulty pediatric neurologists experience when transferring these patients to adult care. Methods: We conducted a cross-sectional study using two postal surveys of all pediatric and adult neurologists in the province of Quebec, Canada. Results: The response rate was 51.5%, with 119 neurologists completing the survey. Half of neurologists agreed that adult neurologists may not have adequate training in childhood onset disorders to prepare them to manage the disorders in adulthood, and 60% of pediatric neurologists reported having difficulty finding an adult provider for their patients. Adult neurologists were least comfortable treating patients with autism, chromosomal or metabolic disorders, and cognitive or behavioral disorders. Conclusion: Almost half of those surveyed believed that adult neurologists are not adequately trained to care for this growing patient population. Improving treatment comfort and knowledge among adult neurologists in childhood onset chronic neurological conditions may smooth the transition of these young adults from pediatric to adult care.
机译：背景：大多数患有慢性神经发育障碍的儿童都可以存活到成年。我们的目标是评估成年神经病学家在准备治疗患有儿童期慢性神经系统疾病的成年患者时的准备程度和舒适度，并评估儿科神经病学家将这些患者转移到成人护理机构时遇到的困难。方法：我们对加拿大魁北克省的所有儿科和成人神经科医生进行了两次邮政调查，进行了一项横断面研究。结果：回应率为51.5％，有119位神经科医生完成了调查。一半的神经科医生同意，成人神经科医生可能未对儿童发作的疾病进行充分的培训，以使其无法应付成年期的疾病，而60％的儿科神经科医生报告说，他们很难为他们的患者找到成人提供者。成人神经科医生对患有自闭症，染色体或代谢性疾病以及认知或行为障碍的患者最不舒服。结论：几乎一半的受访者认为，成人神经科医生没有得到足够的培训来照顾这种不断增长的患者群体。在儿童期发作的慢性神经系统疾病中，成人神经科医生的治疗舒适性和知识水平的提高可能会使这些年轻成年人从儿科到成人护理的过渡更加顺利。

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