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首页> 外文期刊>Western journal of nursing research >Living with the stigma of hepatitis C.
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Living with the stigma of hepatitis C.

机译:患有丙型肝炎。

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摘要

Stigma poses significant challenges to those with chronic hepatitis C (CHC), their social networks, communities, and society. This study's purpose was to identify and describe how people lived with CHC and made self-care decisions. Data are presented from interviews and daily recordings of 26 study participants. Experiences of stigma were attributed primarily to misconceptions about the cause and transmission of the disease and its association with illicit drug use. Perceptions and responses to stigma were context-dependent, flexible, and varied over time. Stigma created barriers to access of health services and undermined the social supports required to address self-care needs and illness management. The extent and severity of stigma suggests that interventions to reduce or eliminate stigma will require individual, structural, and systemic changes. Further study is required to clarify the relationship between the trajectory of CHC and the experience and responses to stigma.
机译:歧视对患有慢性丙型肝炎(CHC)的人,其社交网络,社区和社会构成了重大挑战。这项研究的目的是确定并描述人们如何生活在慢性丙型肝炎中并做出自我保健的决定。数据来自26位研究参与者的访谈和每日记录。污名化的经验主要归因于对疾病的原因和传播以及与非法药物使用相关的误解。对耻辱感的感知和响应取决于上下文,灵活且随时间而变化。污名化为获得卫生服务提供了障碍,并破坏了满足自我护理需求和疾病管理所需的社会支持。污名的程度和严重性表明,减少或消除污名的干预措施需要个体,结构和系统的改变。需要进一步研究以阐明CHC的轨迹与经验和对污名的反应之间的关系。

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