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The experiences of Latino siblings of children with developmental disabilities

机译:发育障碍儿童拉丁裔兄弟姐妹的经历

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Objective This qualitative study explored the experiences of Latino siblings of children with developmental disabilities. Methods Parents and typically developing siblings from 15 Latino families with a child with a developmental disability participated in separate interviews. Results Using consensual qualitative research methodology, domains reflecting siblings' relationships, emotional experiences and communication about the disability were identified. The child's need for caregiving was a prominent topic in the sibling and parent narratives. Parents reported concerns about siblings' experience of differential treatment, whereas siblings reported concerns about restricted social activities because of their brother/sister. Conclusions Including multiple informants revealed commonalities and differences in parents' and siblings' perspectives on the impact of a child's disability. The importance of considering sibling adaptation in sociocultural context is discussed.
机译:目的这项定性研究探讨了发育障碍儿童拉丁裔兄弟姐妹的经历。方法来自15个拉丁裔家庭的父母和典型的同胞兄弟姐妹有发育障碍的孩子参加了单独的访谈。结果使用自愿定性研究方法,确定了反映兄弟姐妹关系,情感经历和有关残疾的交流的领域。在兄弟姐妹和父母的叙述中,孩子的照料需求是一个突出的主题。父母对兄弟姐妹的差别待遇感到担忧,而兄弟姐妹则对兄弟姐妹的社交活动受到限制表示担忧。结论包括多个线人,揭示了父母和兄弟姐妹对儿童残疾影响的观点的共性和差异。讨论了在社会文化背景下考虑同胞适应的重要性。

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