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首页> 外文期刊>Journal of empirical research on human research ethics : >The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots
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The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots

机译：残留新生儿筛查干血斑对教育对公众信任和同意偏好的影响

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摘要

The objectives of this study were to evaluate the impact of educational interventions during prenatal care on public trust for newborn screening and consent preferences for the retention and use of leftover newborn screening dried blood spots. Women who were 30 to 36 weeks pregnant were recruited, and outcomes were measured by telephone survey 2 to 4 weeks postpartum (n = 901). Approximately 40% of the sample chose the opt-out approach but those who watched educational interventions delivered during prenatal care were significantly associated with higher levels of trust and support for an opt-out consent approach. Providing education during prenatal care about newborn screening and the storage and use of leftover dried blood spots along with brochure-based education provided in the hospital when the baby is born is associated with improved trust for the program and support for research with the leftover blood spots.
机译：这项研究的目的是评估产前护理期间教育干预对公众对新生儿筛查的信任以及保留和使用剩余新生儿筛查干血斑的同意偏好的影响。招募怀孕30至36周的妇女，并在产后2至4周通过电话调查法评估结局（n = 901）。大约40％的样本选择了选择退出的方法，但是那些观看了产前护理期间提供的教育干预措施的人与选择退出的同意方法的信任度和支持水平显着相关。在产前保健期间提供有关新生儿筛查以及剩余干血斑的存储和使用的教育，以及在婴儿出生时医院提供的基于小册子的教育，可以增强对该计划的信任，并支持对剩余血斑的研究。

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