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首页> 外文期刊>Journal of nursing and healthcare of chronic illness >The daily living for informal caregivers with a partner with Parkinson's disease - an interview study of women's experiences of care decisions and self-management
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The daily living for informal caregivers with a partner with Parkinson's disease - an interview study of women's experiences of care decisions and self-management

机译：与帕金森氏病伴侣一起非正式护理人员的日常生活-有关女性护理决策和自我管理经验的访谈研究

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The daily living for informal caregivers with a partner with Parkinson's disease - an interview study of women's experiences of care decisions and self-management Aim. To throw light on the lived experiences of female partners of patients with Parkinson disease living at home. Background. It is known that daily life with a partner with Parkinson's disease entails radical upheaval in the family, in particular for the female partner. Methodology. A phenomenological hermeneutic approach was used. Interviews with female partners (N = 10) of patients with Parkinson disease who were living at home were conducted in Denmark in 2008. The French philosopher Ricoeur's theory of interpretation guided the data analysis. Conclusion. This study shows that essential to the women's experiences was the impact on daily life and changes to their quality of life in living close to a partner with Parkinson's disease. As the disease gradually developed to affect motor, cognitive and emotional functioning, the need for care decisions related to help with daily activities and functions arose, and the women became informal caregivers. Relevance to clinical practice. The results could add to health providers' understanding of the significance of informal care and raise the consciousness of women caregivers about how their own quality of life diminishes by setting aside their own needs in favour of the care needs of their chronically ill partner. The women's contribution should be better valued, and they should be supported to a greater extent to retain/ maintain their self-management capacity. Respite and relief from the care burden should especially be provided for women who live at home with a chronically ill partner.
机译：与帕金森氏病伴侣一起非正式护理人员的日常生活-有关妇女护理决策和自我管理目标的访谈研究。阐明在家中患有帕金森氏病的女性伴侣的生活经历。背景。众所周知，患有帕金森氏病的伴侣的日常生活导致家庭的剧变，特别是对于女性伴侣。方法。使用了现象学的解释学方法。 2008年，在丹麦对居住在家里的帕金森氏病患者的女性伴侣（N = 10）进行了访谈。法国哲学家里科（Ricoeur）的解释理论指导了数据分析。结论。这项研究表明，对女性的体验至关重要的是对日常生活的影响以及与帕金森氏病伴侣近距离生活的生活质量的变化。随着疾病逐渐发展影响运动，认知和情感功能，需要做出与日常活动和功能有关的护理决定，这些妇女成为非正式的护理人员。与临床实践有关。结果可能会增加医护人员对非正式护理重要性的理解，并提高女性护理人员对自己的生活质量如何降低的意识，因为他们抛开了自己的需求，转而照顾慢性病伴侣的护理需求。妇女的贡献应得到更好的重视，并应得到更大程度的支持，以保持/维持她们的自我管理能力。应当特别为与长期病伴侣生活在家里的妇女提供喘息和减轻照料负担。

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