...
  • 主题
高级搜索  >
历史搜索 清空历史
首页> 外文期刊>Journal of paediatrics and child health >A mother describes her child's experience with juvenile arthritis
【24h】

A mother describes her child's experience with juvenile arthritis

机译：一位母亲描述了她的孩子对青少年关节炎的经历

获取原文
获取原文并翻译 | 示例
           
页面导航
  • 摘要
  • 著录项
  • 相似文献
  • 相关主题

摘要

At 14 months, my son Aiden began having frequent fevers and developed an intermittent rash all over his body. He began having excruciating neck pain and was unable to walk. He was referred to Professor Don Roberton at the Women's and Children's Hospital, Adelaide, who diagnosed systemic onset juvenile idiopathic arthritis (JIA). Anti-inflammatories were commenced but with little improvement over a period of months. Aiden was hospitalised and received infusions of meth-ylprednisolone, IVIG, oral prednisolone and methotrexate. The side effects included a suppressed immune system and Cushing's syndrome. The JIA was never really under control. Over the next few years, Aiden had trials on different monoclonal antibodies. The decision to try these required us to make difficult decisions on Aiden's behalf, based on trial data and limited information. Each drug had side effects, but Aiden was about to start school and we wanted him to have a decent quality of life and the opportunity to socialise with his school friends, which is why we decided to try these new drugs. For a time, the JIA was better controlled, but Aiden was hospitalised for joint injections and arthroscopies. He missed a lot of school, was unable to participate in physical activity and used a wheelchair/chairlift frequently.
机译：14个月大时，我的儿子艾登（Aiden）开始发烧，全身出现间歇性皮疹。他开始患有严重的颈部疼痛，无法走路。他被转诊至阿德莱德妇女儿童医院的唐·罗伯顿教授（Don Roberton），他被诊断为系统性的少年特发性关节炎（JIA）。开始消炎，但在几个月的时间内几乎没有改善。艾登住院治疗，并接受了甲基强的松龙，IVIG，口服泼尼松龙和甲氨蝶呤的输注。副作用包括免疫系统抑制和库欣综合症。 JIA从未真正受到控制。在接下来的几年中，艾登已针对不同的单克隆抗体进行了试验。尝试这些决定的决定要求我们根据审判数据和有限的信息，代表艾登做出艰难的决定。每种药物都有副作用，但艾登（Aiden）即将开始上学，我们希望他的生活质量得体，并希望有机会与他的学校朋友进行社交，这就是为什么我们决定尝试这些新药的原因。一段时间以来，JIA得到了更好的控制，但是艾登因关节注射和关节镜检查而住院。他错过了很多学校，无法参加体育锻炼，并经常使用轮椅/升降椅。

著录项

相似文献

  • 外文文献
  • 中文文献
  • 专利
获取原文

客服邮箱：kefu@zhangqiaokeyan.com

京公网安备：11010802029741号 ICP备案号：京ICP备15016152号-6 六维联合信息科技 (北京) 有限公司©版权所有

  • 客服微信

  • 服务号