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首页> 外文期刊>Journal of prosthetics and orthotics: JPO >Caregiver Satisfaction for Orthotic Management of a Severely Involved Child with Cerebral Palsy Seen at Age 7 Years and 19 Years
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Caregiver Satisfaction for Orthotic Management of a Severely Involved Child with Cerebral Palsy Seen at Age 7 Years and 19 Years

机译：7岁和19岁严重重度患脑瘫儿童的矫正治疗对照顾者的满意度

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Introduction: A single-subject case report of a female with a diagnosis of cerebral palsy (CP) was undertaken to determine the long-term compliance and satisfaction with orthoses used to manage elbow contractures, as well as to determine the status of elbow range of motion (ROM) after the initiation of treatment 12 years ago. The subject, now aged 19 years, was part of an earlier pilot study conducted in 2003. Methods: The evaluation before receiving the Ultraflex elbow wrist hand orthoses (EWHOs) and at the end of the study consisted of passive ROM (PROM) of the elbows and wrists and the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) section on personal care activities of daily living. Botulinum toxin type A (BTX) was administered into the biceps, brachioradialis, and wrist flexors in both upper limbs. The subject (K.D.) was casted to both wrists over a 3-month period. K.D. was then measured by the orthotist for bilateral custom-fitted EWHOs. Results: The personal care/activities of daily living total score was 42.5. The score was unchanged before and after the study. Her mother continued to struggle with upper-limb dressing for K.D. There was minimal change in elbow PROM, although there was greater improvement in wrist PROM. Conclusions: The primary caregiver is the key regulating factor in determining orthotic compliance outcomes. For an aging caregiver, with a young adult dependent in self-care, a daily wearing schedule may be an unrealistic goal. An alternative orthosis or wear schedule may be needed to assist with caregiver compliance.
机译：简介：对女性进行脑瘫（CP）诊断的单例病例报告旨在确定对用于处理肘关节挛缩的矫形器的长期顺应性和满意度，以及确定肘关节挛缩的状况。运动（ROM）在12年前开始治疗后。该受试者现年19岁，是2003年进行的较早先导研究的一部分。方法：在接受Ultraflex肘关节腕手矫形器（EWHOs）之前以及在研究结束时，该评估包括被动ROM（PROM）的评估。肘部和手腕以及“照顾者的优先重点和残障儿童健康指数”（CPCHILD）部分，介绍日常生活中的个人护理活动。将A型肉毒杆菌毒素（BTX）注入到两个上肢的二头肌，肱肱肌和腕屈肌中。在3个月的时间里，被检者（K.D.）被丢到两只手腕上。 K.D.然后由矫形师对定制的双边EWHO进行测量。结果：个人护理/日常生活综合得分为42.5。研究前后该分数没有变化。她的母亲继续为K.D.尽管腕部PROM的改善更大，但肘部PROM的变化很小。结论：初级护理人员是决定矫形顺应性结果的关键调节因素。对于年老的照料者来说，要依靠年轻人进行自我保健，每日佩戴时间表可能是不现实的目标。可能需要替代矫形器或佩戴时间表，以帮助照顾者顺从。

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