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首页> 外文期刊>Pediatric blood & cancer >Parental perception of child vulnerability in childhood cancer survivors
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Parental perception of child vulnerability in childhood cancer survivors

机译：儿童癌症幸存者中儿童脆弱性的父母感知

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Abstract Background Parents’ perception of their children's vulnerability to illness following cancer treatment is largely unknown, but is important to understand given known challenges of transitioning survivors to postcancer care. We investigated the frequency of and factors associated with perceived vulnerability by parents of childhood cancer survivors attending a regional survivorship clinic. Procedure This cohort study was offered to all parents of pediatric patients (currently?≤18?years) attending the Yale childhood cancer survivorship clinic January 2010 to October 2016 who were?≥1 year postcurative cancer therapy. Participating parents (one per patient) completed the standardized Child Vulnerability Scale at the beginning of the clinic visit (cutoff score?≥10 for perceived vulnerability). Patient sociodemographics, cancer history, and posttherapy complications were abstracted from medical records. Results Overall, 116 parents participated (98% participation rate) consisting of 89% mothers; survivors were 46% female, had a current mean age of 12.7?±?3.9?years, and were a mean of 6.4?±?3.8?years posttherapy. Twenty‐eight percent ( n ?=?33) of parents perceived their children as vulnerable. Survivor sociodemographics (age, sex, race/ethnicity, family income, insurance, parental marital status, number of siblings), cancer diagnosis, years off‐therapy, survivorship visit number, treatment intensity, and late complications (number, type, severity) were not associated with perception of vulnerability. Conclusions A sizeable proportion of parents continue to perceive their children as vulnerable even years after cancer therapy completion independent of current health status or past cancer history. Our data suggest the need to educate all parents of childhood cancer survivors regarding health risk, including those at lower risk for late complications.
机译：摘要背景父母对癌症治疗后儿童对疾病的脆弱性的看法在很大程度上是未知的，但对于将幸存者转化为后癌商护理的挑战是重要的。我们调查了与参加区域生存诊所的儿童癌症幸存者的父母的感知脆弱性相关的频率和因素。程序本队列研究提供给儿科患者的所有父母（目前？≤18？年），参加了2010年1月至2016年10月的耶鲁儿童癌症救世主诊所？≥1年的后期癌症治疗。参与父母（每位患者一个人）在诊所访问开始时完成了标准化的儿童漏洞规模（截止得分？≥10用于感知漏洞）。患者的社会主干，癌症历史和后治疗并发症是从病历中抽象出来的。结果总体而言，116名父母参加（98％的参与率）由89％的母亲组成;幸存者女性为46％，目前的平均年龄为12.7？±3.9？年，均为6.4？±3.8？3.8岁的后期治疗。父母的二十八百（n？= 33）将孩子感到脆弱。幸存者社会主学教学（年龄，性，种族/种族，家庭收入，保险，父母婚姻状况，兄弟姐妹数量），癌症诊断，幼儿疗法，生存率访问号码，治疗强度和晚期并发症（数量，类型，严重程度）与对脆弱性的看法无关。结论父母的大量比例继续认为甚至在癌症治疗完成后甚至易受伤害的群体，无关，无关，甚至无关，甚至无关，甚至无关，均为当前的健康状况或过去癌症历史。我们的数据表明需要教育有关健康风险的儿童癌症幸存者的所有父母，包括降低后期并发症风险的人。

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